ysobel: (Default)
masquerading as a man with a reason ([personal profile] ysobel) wrote2017-03-14 01:59 pm

Updates and stuff

Happy pi day! (US version, anyway. And non-military-time.)

Lots of updates! Because I suck at posting here. Ahem.

I forgot to post here when Loki came back (my last post was him being missing) but he was only gone a week. Very long week, and I have no idea where he was, but he seems unscathed by his adventures.

My new chair, *finally* (after only a year and a half of trying), is usable. They managed to get it to tilt back more than the manufacturer's specs indicated, but I needed the extra tilt for repositioning and for pressure relief. It's still not as comfortable as the old chair but at least it doesn't randomly crap out.

My niecelet is still the cutest. Went down to visit her weekend before last (and gave her a hat which she *loved*), andthen my sister had a work-team trip to Tahoe last week so I got to have dinner with them when they came back through. I need to do a picspam one of these days, because cuuuute. Also she is a total chatterbox, and loves to sing, especially the alphabet song.

This last week was Rehearsal Hell Week -- five hours of rehearsal Tuesday, five Thursday, five Saturday, two Sunday, and then performing Sunday night. I actually skipped the Saturday morning rehearsal so I wouldn't be too fatigued for the concert -- there was no way I could get up in time for a 9:30 start, rehearse until 4 (with a lunch break), and still be able to think straight by Sunday night. I felt a bit guilty, but RHW always wiped me out even when I didn't have underlying fatigue issues.

Speaking of which, I ... er ... still have fatigue issues. I'm starting to suspect/worry it's the new normal; it's quite possible that the fact that I can't move means I'm just physically not generating energy. I've been trying to find alternative explanations, thyroid or vitamin or whatever, but all that is testing more or less normal. Though I'm not convinced my D is high enough; my doctor isn't concerned, but eh what does she know ;)

Crafting stuff: I made a hat for my niecelet, and currently have three active projects: a crochet shawl made with a rainbow gradient (it's so fun watching the color change as I go!), a knitted lace shawl, and a hat I'm using to re-figure out knitting in the round and also to teach myself Portuguese knitting. (PK involves having the yarn tensioned in front, rather than from behind; purling is ridiculously easy, and knitting is a bit more awkward but doable, and for the most part it's mechanically easier given my physical limitations. My tension is shit, but I'm not stressing about that too much.). Did I mention I like playing with yarn? Cause I do. Yay yarn!

Okay that's enough updates for now. If you read all this, have a cookie 🍪
zhelana: (Default)

[personal profile] zhelana 2017-03-14 08:34 pm (UTC)(link)
So glad Loki came back! I know it's nerve wrenching when they go missing.
princessofgeeks: (Default)

[personal profile] princessofgeeks 2017-03-14 09:32 pm (UTC)(link)
Thanks so much for the update, and Happy Pi Day to you too.
jesse_the_k: Finding Nemo's Dory, the adventurous fish with a brain injury (dain bramage)

[personal profile] jesse_the_k 2017-03-15 10:09 pm (UTC)(link)
Seems like yarn loves you back, which is as it should be.

New-chair follies are the pits. Did you have to go through the "one year rental" nonsense?
jesse_the_k: Sprinter with right AK prosthetic leg, shot from neck down (prosthetic sprint)

Box-Outers Unite

[personal profile] jesse_the_k 2017-03-21 08:00 pm (UTC)(link)
"UnMotion" *snort*

Juggling three levels of insurance is a total PITA, but that's the standard level of hurry-up-and-wait, and it's SO WRONG! I'm happy to answer Qs from strangers who are curious about obtaining a wheelchair, and to a person they're floored when they learn what the Medicare/Medicaid process is like.

No lumbar curve? I had the same problem! Here's an out-of-the-box solution courtesy of my PT/OT/miracle body worker. She solved it with a rectangle of poly fleece, folded into a loose, low pillow. I have a stock Quantum back, with a stretch cover, and nice foam split by a vertical channel which holds a gel strip parallel to my spine. She adjusted the fleece to various thicknesses, testing it with the pillow between my body and the back's cover. (The fleece was rough enough to stay in place for a short time.) When we got it right, she pulled the stretch cover off then tucked the pillow under the gel strip. It took all of 30 minutes—no purchase orders or prior auths or nothing.

I wish to hell they'd give us the software and cord so we could program our own joysticks! They'll come by and adjust it, and it's only a week later that I realize, no, I don't want the slow program to turn THAT slow &c &c. The last time I tried, I used program 1 as a reference, and then suggested percentage changes from that value for other programs. The mechanic couldn't understand what I wanted. Luckily I have five programs, and two of them are pretty great for day to day.