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I posted https://ysobel.dreamwidth.org/538921.html about a kid with my medical condition who was in the hospital and needed prayers. (Personally I don't believe that prayers will fix everything -- it is not a vending machine, where you insert prayer and collect pony / get healed / etc -- but I like to believe that putting positive energy into the universe certainly can't hurt, and ... I'm babbling, right.)

I just checked her mom's Facebook page after a few days of forgetting, and the current situation is that her left lung has collapsed *and* she has raging pneumonia.

There are good things: she has a trach, added like a week or so ago, which means her medical team has better access to her airway; she *has* a good medical team; and her right lung is extremely kick-ass. (I guess having a fused rib cage means the lungs tend to get better about working in the space they have, or something?)

But she's only fucking 11 years old (I think her birthday's this month) and she's *tiny* and skinny and has no reserves to lean on. Her co2 numbers have been high, and vitals all over the place. I'm scared for her, and for her family, and in a weird way for myself. (Pneumonia is one of the two main killers of FOP people. Falling is the other. I don't walk or stand, so falling is less likely to happen, but pneumonia is still something I could get. I try hard not to, but,)

If you are so inclined, please send prayers or healing vibes Erin's way, or light a candle for her, or whatever positive-energy ritual you have. 💜💜💜

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masquerading as a man with a reason

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