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More health "fun"
* Last three days have woken up with a migraine -- I'm assuming it's one multi-day migraine rather than three successive ones. Imitrex is magic, but I've still been feeling like crap
* also the last three days, my tongue has been weirdly sluggish, especially in the mornings. I'm slurring words a bit (anything with s comes out more like sh) and one of the days I couldn't turn my tongue sideways, like the left side wasn't responding. It's worse when I lie down, either because of gravity pulling things back or because the pillows might push my head slightly forward. I don't know if this is a migraine thing (it would be a new symptom if so) or related to the FOP flareup or something unrelated
[Edit: not a migraine symptom. Saturday had no migraine on waking but still had the tongue issues.]
* can also feel something in my mouth, below my bottom teeth; there's a ridge/flap that I can prod with my tongue, and it feels puffy on one side (maybe a salivary gland?) and I don't know if it's new/changed or just I never noticed it before.
* the last week or so I have been getting ravenously hungry at night. My meal schedules haven't changed (11, 2:30, 6) but I used to be fine through the night and now I'm very not. I don't have an aide on duty (my roommate is available in case of emergency but I hate bothering her) so I can't check blood sugar to see if that's tanking or whatever, nor eat something snackish. Not sure what to do. (And this is WITHOUT the "count calories and reduce" the endo suggested.)
* speaking of blood sugar, I am completely crap at remembering to have my aides poke my fingers -- I only ever remember when I don't have someone here or right after eating -- so I looked into getting a continuous glucose monitor. Problem A: insurance won't cover it because I'm not on insulin injections. Problem B: I can get one (paying out of pocket) but the only approved site for the sensor is back of the arm, and you can use a smartphone rather than a separate device but either way it looks like it has to be held right in front of the sensor, which I can't do by myself. (Also from what the person I was talking to about it was saying, I gather it has an 8-hour "memory", so scanning it when I go to bed at 9 and then scanning it when I get up at 10:30 means I can't find out what happens overnight...)
grump.
* also the last three days, my tongue has been weirdly sluggish, especially in the mornings. I'm slurring words a bit (anything with s comes out more like sh) and one of the days I couldn't turn my tongue sideways, like the left side wasn't responding. It's worse when I lie down, either because of gravity pulling things back or because the pillows might push my head slightly forward. I don't know if this is a migraine thing (it would be a new symptom if so) or related to the FOP flareup or something unrelated
[Edit: not a migraine symptom. Saturday had no migraine on waking but still had the tongue issues.]
* can also feel something in my mouth, below my bottom teeth; there's a ridge/flap that I can prod with my tongue, and it feels puffy on one side (maybe a salivary gland?) and I don't know if it's new/changed or just I never noticed it before.
* the last week or so I have been getting ravenously hungry at night. My meal schedules haven't changed (11, 2:30, 6) but I used to be fine through the night and now I'm very not. I don't have an aide on duty (my roommate is available in case of emergency but I hate bothering her) so I can't check blood sugar to see if that's tanking or whatever, nor eat something snackish. Not sure what to do. (And this is WITHOUT the "count calories and reduce" the endo suggested.)
* speaking of blood sugar, I am completely crap at remembering to have my aides poke my fingers -- I only ever remember when I don't have someone here or right after eating -- so I looked into getting a continuous glucose monitor. Problem A: insurance won't cover it because I'm not on insulin injections. Problem B: I can get one (paying out of pocket) but the only approved site for the sensor is back of the arm, and you can use a smartphone rather than a separate device but either way it looks like it has to be held right in front of the sensor, which I can't do by myself. (Also from what the person I was talking to about it was saying, I gather it has an 8-hour "memory", so scanning it when I go to bed at 9 and then scanning it when I get up at 10:30 means I can't find out what happens overnight...)
grump.
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