ysobel: (Default)
tues-thurs: migraine

fri: migraine hangover

fri, 11pm: notice soreness in right pectoral? that quickly becomes "breathing hurts"

overnight: even shallow inhale causes twinges; deeper breaths spike to 9 on pain scale; each inhale feels like getting speared, muscle feels like it wants to collapse ??. get maybe 1h sleep.

sat: breathing still hurts. shallow breathing ok, but deeper -- including automatic inhale before yawn, or the little gasps of "you've been breathing too shallowly, stoppit" -- still hurt, albeit only to 6.

Can't tell if this is a FOP thing (it's not flareup pain and there's no swelling visible but could be caused by ribcage bone growth) or what
ysobel: (Default)
Feeling vaguely human again. Still testing positive for covid (and, apparently, flu B) but symptomatically better... well ok I'm sleeping a lot (12h, up from last week's 14h; at least that's my "lying in the dark with eyes closed" time, not necessarily literally asleep because brains are silly) and still feel constantly tired, but I have a voice again.

Wrist is improving but I'm taking things easy there; crossword is on computer (slower and awkwarder), Duolingo halfheartedly done on computer, other games mostly stopped.

Funny, I'd been thinking I should reduce gaming time anyway 🙃 since it's mostly idle gaming where you check it and upgrade things and do busywork quests to unlock cute things but if you sit down and think you're not really *doing* anything. Guess going from ~9h sleep to ~14h is a very effective strategy at going cold turkey with stuff, especially stuff that would have happened during the 5 hours now spent not awake.

Dreams have been their usual. Several involving creepy crawlies deets ) A couple dreams where my eyes keep closing, and in the attempt to fight that (because of course I'm fighting a shapeshifting shark taking the current form of a cat eel hybrid thing) I force my irl eyes open, waking me up. A bunch of dreams about choir rehearsals. One where I was waiting for my dad to pick me up and some guy put his hand on the back of my neck so I yelled that I was being abducted.

(This is of course sleep dreams, not "what I am doing with my life" dreams.)

This week I got myself a clock that a) has a nice big display, b) the option of colorshifting the display (currently a slow roygbiv fade rotation), and c) ability to project onto the ceiling (that sadly doesn't color-change, oh well). It means that when I wake up in the middle of the night I can tell what time it is without having to move. Yesterday I had a multi hour stretch of waking up every half hour...boo. Brains are silly. But the clock makes me ridiculously happy.

Yuletide story is creeping slowly along. I dithered sending it back for a different pinch hitter, given sick + carpal tunnel + haven't written anything in *mumble* years, but I still have time... that and a half-fleshed-out story. Whatever happens it'll technically be the best thing I wrote all year ... looool. (Haven't posted prompts on the "ph prompts here", won't until I definitely have a fill.)
ysobel: (Default)
This week, through Saturday, Canine Companions has a live puppy stream going at http://canine.org/puppy/ ... 7-week lab puppies are impossibly cute. Jussayin'.

#

Still sick, but feeling vaguely human again. I had stopped using the cpap while I was having sinus pressure and blockage, Friday through Sunday, but I definitely sleep better with it going, so last night I went back to it.

I dreamed of a MMORPG boss encounter (that doesn't actually exist) ... it was designed for two people, in that there were two stations with dials that had to be set and then levers pulled, but I was soloing it, so running back and forth. Occasionally the boss would pop in and radiate green, but as long as you were far enough away you wouldn't take damage. So you had to stand towards the outside edge of each lever station, so that when the boss popped up next to you there'd be enough room to run to the other end of the stage -- if he appeared in the middle of the room you had to hope you had good healing. Then once the levers were all set you could actually damage the boss, which was easy because I was overleveled for the encounter, and at the end you got a piece of a particular set of wicked-looking studded leather armor. The armor level was low for my character but there was a game mechanic where you could combine ugly-but-good armor with pretty-but-flimsy armor to get the stats of one and the look of the other. So I was farming the encounter for the armor set so that I could combine and also dye it all black.

The mmo dreams I have aren't exactly either Guild Wars or WOW or anything else I've played, but a sort of hybrid; location names are often a stolen mishmash, e.g. I'll map-jump from Lion's Arch to Orgrimmar to Cantha to Ironforge. It's kind of fascinating.
ysobel: (bleah)
Saw doctor yesterday. Confirmed that it's not covid, flu, RSV, or strep (the latter seemed lsss likely but why not test). Which means... unnamed crud.

Of course my sinuses waited to get involved until hours after telling the doctor they weren't. lol? Thank goodness for DayQuil. Nasal congestion is especially shitty when you can't blow your own nose.

Right now every time I exhale it makes noises that almost sound like velociraptors. It's distracting. I'm supposed to be trying to sleep but augh.

I'm also grumpy because I'd had a ticket to see Fiddler on the Roof tomorrow (local production) and I was really looking forward to it ... but going would be a bad idea for several reasons. I know there's a movie but it's not the same.

Instead I'll probably just binge watch something like The Good Place or Brooklyn 99 or... idk... Bluey...
ysobel: (Default)
Content note: medical stuff, not too graphic. Also part of the entry mentions food intake, and references to a previous medical recommendation re calories, but there will be a cut for that.


Sunday evening I crashed right after going to bed, which I thought was just a worse than usual version of the mini-crashes I figured out were Probably Autism, but those I usually perk up from, and this ... not so much. By Monday it had rolled into headache plus nausea plus fatigue plus brain fog plus chills plus light/noise sensitivity. I did a COVID test (negative) and then just tried to survive the day.

...which turned into week...

Tuesday I took my last imitrex but it was out of date. By afternoon the nausea was worse to the point of throwing up multiple times, and then after I went to bed the chills shifted to epic sweating (soaking pillows and sheets within 3 hours). Also I'm pretty sure I hallucinated a smell at one point? Spicy sausage gravy, when no one was cooking? ...anyway. Since then things have been slowly getting better but my appetite has been off, my capacity to eat/drink has been off, temperature self-regulation has been wonky, energy low, and still the sensitivity to light and sound and still headache -- though oddly intermittent and pretty low-key, thank fuck. (I have brain fog but not the pain so strong it's overwhelming.)

I have looped my doctor in, yes. Not until today but I kept hoping it would just go away. I also seem to have ingrained a "feeling shitty is just something you endure" thing where I don't want to bother my doctor (and things like medication don't occur) that I need to poke at sometime.

Here's where I start talking about food, and calories are not specifically counted but I add snark about a previous doctor recommendation that suggests it. Feel free to skip. If you are on the entry page where there's no cut, skim for bold text.

Read more... )

I think/hope I'm trending upward at this point. Don't really know though.
ysobel: (fail)
* Last three days have woken up with a migraine -- I'm assuming it's one multi-day migraine rather than three successive ones. Imitrex is magic, but I've still been feeling like crap

* also the last three days, my tongue has been weirdly sluggish, especially in the mornings. I'm slurring words a bit (anything with s comes out more like sh) and one of the days I couldn't turn my tongue sideways, like the left side wasn't responding. It's worse when I lie down, either because of gravity pulling things back or because the pillows might push my head slightly forward. I don't know if this is a migraine thing (it would be a new symptom if so) or related to the FOP flareup or something unrelated

[Edit: not a migraine symptom. Saturday had no migraine on waking but still had the tongue issues.]

* can also feel something in my mouth, below my bottom teeth; there's a ridge/flap that I can prod with my tongue, and it feels puffy on one side (maybe a salivary gland?) and I don't know if it's new/changed or just I never noticed it before.

* the last week or so I have been getting ravenously hungry at night. My meal schedules haven't changed (11, 2:30, 6) but I used to be fine through the night and now I'm very not. I don't have an aide on duty (my roommate is available in case of emergency but I hate bothering her) so I can't check blood sugar to see if that's tanking or whatever, nor eat something snackish. Not sure what to do. (And this is WITHOUT the "count calories and reduce" the endo suggested.)

* speaking of blood sugar, I am completely crap at remembering to have my aides poke my fingers -- I only ever remember when I don't have someone here or right after eating -- so I looked into getting a continuous glucose monitor. Problem A: insurance won't cover it because I'm not on insulin injections. Problem B: I can get one (paying out of pocket) but the only approved site for the sensor is back of the arm, and you can use a smartphone rather than a separate device but either way it looks like it has to be held right in front of the sensor, which I can't do by myself. (Also from what the person I was talking to about it was saying, I gather it has an 8-hour "memory", so scanning it when I go to bed at 9 and then scanning it when I get up at 10:30 means I can't find out what happens overnight...)

grump.

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masquerading as a man with a reason

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