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Hangry
CW food, diet, medical advice
#
Last week I spoke with one of the FOP specialists, an endo in SF, mostly about the flareup but also various other things, both FOP related and endocrinology related. He said among other things that I should consider myself as probably having osteoporosis, because it's common in older FOPers, especially ones who aren't doing any weight-bearing exercise.
He then suggested-- I'm not sure if this was for osteoporosis or for blood sugar or for other things I'm high risk for because sedentary, that I should evaluate my caloric intake and "drop it 5-10% across the board".
...I'm so fucking not doing that.
Should I? Maybe. I don't know. I'd still be at risk of the same shit, and I'd be hangry and miserable. But also it's fucking hard getting myself fed regularly / appropriately; adding in trying to measure calories even with no change would be halfway impossible.
And, like, what I have now isn't vast quantities of all-you-can-eat buffets or whatever. Breakfast is either two eggs with bread (form varies, sometimes includes cheese) or yogurt with granola; lunch is a peanut butter sandwich or similar; dinner is whatever my roommate makes, usually pretty consistent with the "half plate non-starchy veggies, quarter plate carbs, quarter plate lean protein" stuff they've drummed at me for years. I could calorie count the first two if I measured. Dinner is more complicated.
...and the last several days I've also been hungry a lot, both during the day and at night. This could still be prednisone effects, although I'm almost done with the taper, but hungry at night is pretty common for me. I can't get up and snack, and I don't like bothering people, so I've learned to just ignore it.
But the doctors don't know this and don't care. I weigh too much and I can't exercise so the only ~lifestyle~ change is diet.
I want to eat things that are bad for me. Cakes and cookies and brownies and pizza and bread and rice and pasta and butter, things that taste good and fucking satisfy me. I feel childishly petulant that don't even get credit for things I'm doing; it's not good enough, never good enough, unless I lose an "acceptable" amount of weight.
(Sometimes I want to just stop eating, insist I'm not hungry or something, ~don't worry I'm fine~. Except I hate being hungry and I get in rotten moods. I think it's more that choosing to refuse food is one of the few freedoms left.)
#
Last week I spoke with one of the FOP specialists, an endo in SF, mostly about the flareup but also various other things, both FOP related and endocrinology related. He said among other things that I should consider myself as probably having osteoporosis, because it's common in older FOPers, especially ones who aren't doing any weight-bearing exercise.
He then suggested-- I'm not sure if this was for osteoporosis or for blood sugar or for other things I'm high risk for because sedentary, that I should evaluate my caloric intake and "drop it 5-10% across the board".
...I'm so fucking not doing that.
Should I? Maybe. I don't know. I'd still be at risk of the same shit, and I'd be hangry and miserable. But also it's fucking hard getting myself fed regularly / appropriately; adding in trying to measure calories even with no change would be halfway impossible.
And, like, what I have now isn't vast quantities of all-you-can-eat buffets or whatever. Breakfast is either two eggs with bread (form varies, sometimes includes cheese) or yogurt with granola; lunch is a peanut butter sandwich or similar; dinner is whatever my roommate makes, usually pretty consistent with the "half plate non-starchy veggies, quarter plate carbs, quarter plate lean protein" stuff they've drummed at me for years. I could calorie count the first two if I measured. Dinner is more complicated.
...and the last several days I've also been hungry a lot, both during the day and at night. This could still be prednisone effects, although I'm almost done with the taper, but hungry at night is pretty common for me. I can't get up and snack, and I don't like bothering people, so I've learned to just ignore it.
But the doctors don't know this and don't care. I weigh too much and I can't exercise so the only ~lifestyle~ change is diet.
I want to eat things that are bad for me. Cakes and cookies and brownies and pizza and bread and rice and pasta and butter, things that taste good and fucking satisfy me. I feel childishly petulant that don't even get credit for things I'm doing; it's not good enough, never good enough, unless I lose an "acceptable" amount of weight.
(Sometimes I want to just stop eating, insist I'm not hungry or something, ~don't worry I'm fine~. Except I hate being hungry and I get in rotten moods. I think it's more that choosing to refuse food is one of the few freedoms left.)
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Why are endocrinologists frequently so terrible about diet? (rhetorical question)
...I'm so fucking not doing that.
Of course not.
I weigh too much and I can't exercise so the only ~lifestyle~ change is diet.
I just looked this up: did you know that bone is nearly twice as heavy as fat? And you have a lot more skeleton than most people. Not that it'd be your fault anyway, but I think this might be even less under your control than for most people.
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Your talent for artistic understatement delights me in that particular appalled way that means you win at language.
Doctors, In General
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* before doing a fool thing like that, how about an actual body composition scan before he rockets his fool mouth off (building on what Vass said)
* bone growth that affects your ability to OPEN YOUR MOUTH is scary in terms of future nutritional options
* switching to nontraditional means of nutrition is associated with the body burning through its resources until shit gets figured out AND EVEN THEREAFTER
* HAVING THE RESOURCES THERE TO BURN is a very GOOD THING for surviving major illnesses (I cannot reliably articulate how scary in retrospect it was that my body went through about 70 pounds before we discovered the cancer)
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Josh Sundquist is a comedian; every bit of his I've seen revolves around how he only has one leg