ubi caritas (et amor)
Sep. 5th, 2010 02:28 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
ysobelHey guys,
IFOPA - the International Fibrodysplasia Ossificans Progressiva Association -- is holding a raffle to raise money for FOP research and programs/services for the FOP community.
FOP isn't a very common disorder, and so it doesn't get a lot of attention; but for those who have it, the research is extremely important, given how crippling the condition is / can be. If you want to know more about FOP, the post here covers, er, what it's like for one person, at least. http://ifopa.org has more information as well.
Tickets for the raffle run $5 each, or $25 for a group of 7 tickets. You are also more than welcome to donate more, or donate separately without being part of the raffle. Prizes and a better description of the raffle can be found here. Tickets can be purchased online, or by phone (number on same page), or by contactingysobel
There will be four winners of the raffle, which will conclude at the beginning of November. But there will also be a more important winner: IFOPA, and the FOP community.
If you can spare it, please consider purchasing a ticket (or more than one). And please feel free to boost the signal!
IFOPA - the International Fibrodysplasia Ossificans Progressiva Association -- is holding a raffle to raise money for FOP research and programs/services for the FOP community.
FOP isn't a very common disorder, and so it doesn't get a lot of attention; but for those who have it, the research is extremely important, given how crippling the condition is / can be. If you want to know more about FOP, the post here covers, er, what it's like for one person, at least. http://ifopa.org has more information as well.
Tickets for the raffle run $5 each, or $25 for a group of 7 tickets. You are also more than welcome to donate more, or donate separately without being part of the raffle. Prizes and a better description of the raffle can be found here. Tickets can be purchased online, or by phone (number on same page), or by contacting
ysobelThere will be four winners of the raffle, which will conclude at the beginning of November. But there will also be a more important winner: IFOPA, and the FOP community.
If you can spare it, please consider purchasing a ticket (or more than one). And please feel free to boost the signal!
no subject
Date: 2010-09-05 10:52 pm (UTC)no subject
Date: 2010-09-05 11:10 pm (UTC)