ysobel: (Default)
cut for medical stuff around body function

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I know my body is doing the best it can, but.
ysobel: (Default)
It's a day ending in y, which means it's time for overthinking things. It's also Yom Kippur. And ... argh I don't even know, just dumping thoughts out

Read more... )

... pretty sure I've had most of this flail before (sans Twitter rabbi stuff) but it keeps coming back at me

I don't know

oh huh

Aug. 16th, 2021 02:16 pm
ysobel: A vibrating bunny, from bunny comics (bwuh?)
so ... last week I was talking with one of my support team (not quite a therapist) about some of the intrusive thoughts I get

(like, uh, being intensely painfully aware that Yahtzee won't live forever ... every single time I look at him, not just occasionally)

and how it had the same feeling -- if thoughts can be felt, not so much emotion as, like, quality? -- as the nightly thought when I was a kid that I absolutely HAD TO say "good night I love you see you in the morning" or else bad things would happen (not guaranteed just a lot more likely) and it would definitely be my fault

and he looked at me and said "I'm not an expert but... have you considered that you might be somewhere on the OCD spectrum?"

(he may not have used the word spectrum, but he pointed out that humans inherently tend to be superstitious critters, and there's a range between "wearing lucky socks" and extreme clinical OCD, and while maybe I don't have enough disruption to be diagnosed as OCD, I'm still somewhere on that range, kind of parallel to how I'm maybe somewhere on the autism spectrum but too masked for diagnosis)

and my kneejerk was that I don't have enough of a germ phobia (even though I know damn well that is not a required element)

but second reaction was thinking about the persistent suicidal ideation I sometimes get, and the thing where I was literally unable to *not* pick at hangnails and dry skin (I could literally be telling myself "stop that you'll just make it worse" and still be doing it), and the only reason I stopped is my fingers don't have enough flexibility (and also sometimes I use tools even though they're less efficient and more damaging), and --

There's a lot of vagueness and overlap between various possible explanations, e.g. intrusive thoughts aren't necessarily OCD indicators; it could be depression and/or anxiety. With depression and anxiety and ADHD and maybe-autism all in the mix, figuring out my brain is like putting together jigsaw puzzles where the pieces of several images have been mixed together and there's no lids, so this set of pieces forms a bird but it's not clear which puzzle it belongs to, and this hole doesn't seem to have a match but either I just haven't found it yet or it's totally lost and I can't know which until everything is put together (only there are infinitely many puzzle pieces so they won't ever be fully assembled), and this other piece doesn't look like it belongs with the already assembled bits but I can't tell if that's because there's one more puzzle in the mix than I thought or just I haven't gotten to the correct spot of the known puzzles...

mrgfhhh. can I just be a cat instead???
ysobel: Spock from Star Trek XI, looking down, face half shadowed (Reboot - Spock)
I'm lying here listening to wrath of khan soundtrack and having All The Damn Feels.

Kinda afraid to watch the new trek series because I get the impression it includes Spock (spoilers )) and I'm afraid they'll mess things up more -- I liked the 2009 Trek AOS but the sesquicentennial
I'm not sure why my tablet thought I meant that instead of sequels .... sequels not so much, and I've ridiculous amounts feels for TOS Spock and so it's like teenager me being all heart-eyes inside and I don't want them to ruin that because teenager me has so few things remaining

and wrath of khan -- plus the sort of trilogy that is WOK/SFS/VH (whales!) -- is solidly my favorite trek movie

I miss my writing and the trek fics I had going
I miss 2009
I miss me
I miss
...
ysobel: (Default)
Too spoonless to tell this in any entertaining way, but I seem to be having gallbladder issues. Two separate attacks of very severe pain just under the breastbone and radiating to the back, rather like I was being impaled by a spear.

Went to doctor today; she wants me to get an ultrasound, but in the meantime avoid fatty foods, like, y'know, eggs and cheese and peanut butter and ice cream and pizza and stuff.

...all of which I now really want...

Whine.

Also I somehow got extremely saladed out a few weeks ago and have been very resistant to salads since then, which ... really doesn't help.
ysobel: (Default)
some of this c/p from discord b/c lazy

I.

me: wanna knit something
also me: has no actual motivation
also also me: lemme browse rav, that'll fix it!

II.

[isabeau] me: when $aide gets back I'll have her get me out some yarn to play with
$aide: gets back
me: stares numbly at reddit
[other person] Some days are low energy reddit days and that's okay.
[isabeau] yeah but 2020 has had about 600 such days...

III.

[isabeau] ...I had my aide make me up a margarita & have not had more than two sips. it is sitting on my desk and just ... sitting there, lol. ah, Executive Dysfunction v2020, how fun you are.

IV.

my AC island is still full of halloween.

I have done barely any yarncraft

my netflix queue is full but I've watched maybe one thing? in the last month

V.

half of my aides are going home for winter break, as is my roommate

I have a few replacements lined up but not enough

do not have overnight-stay replacement. really really don't want my mom staying over.

strongly tempted to just stay alone even though that's stupid and also unsafe.

VI.

brainweasels say all of above is proof I suck

not sure they're wrong
ysobel: (Default)
This ... has not been the best week.

Not a great couple of weeks really. Went from massive heat wave (many days over 100 with forecast for weeks thereof), then random thunderstorm, then the wildfires have been making the air shitty. I'm not in immediate danger firewise but hazy orange air is never fun. At least I wasn't going anywhere anyway.

Then Monday happened, and fuck Monday. Three aides called out (Monday afternoon's because vomiting, Monday+Tuesday night's because secondhand contact with a covid case, Tuesday+Wednesday morning's because of a sprain) and they were all justifiable reasons but three at the same time sucks. Luckily I have six in rotation, so I wasn't stranded, but. Then my commode chair -- which is a fancy shmancy thing that can tilt, so I can tilt it back to lower in from the sling and then tilt forward to pee, though obviously I'm not personally doing the tilting -- got extremely reluctant to tilt. It had been cranky for maybe a week so I'd called NuMotion (grrr) and their first available tech in the area was sept 16, but Monday it got to the point where it took two people to get it upright, and then Tuesday it just stopped tilting entirely

(luckily my dad was available to take it in to them to get it looked at, and they got it temporarily working plus ordered a bunch of new parts, but there were a couple of toileting sessions that required, erm, creativity)

And also I am possibly getting a UTI. Well, probably. Suspicious odor, plus yesterday and today there's a mild ache when my bladder is empty. No burning, so either it's more bladder than ut, or one of the many mysterious fucked-up-ednesses of my urethra includes scarring or something that makes it less sensitive, idk. I'm downing cranberry and pretending that's enough, because denial is fun.

So yeah that's this week.

Oh and my body's current preferred sleeping schedule seems to involve crashing as soon as I'm in bed (730 or 8), sleeping for about two hours, waking up and doing iPad shit like duo and daily stuff, and then going back to sleep around 11 or 12. I don't understand it at all ¯\_(ツ)_/¯ My evening Netflix use has gone way down, lol. (I'm more used to "do stuff on iPad, including maybe Netflix, until 11/12/1, then sleep". But oh well.)

Huh

Jul. 15th, 2020 08:52 pm
ysobel: (Default)
I saw a thing the other day that was basically this: if you're feeling tired and crappy and unproductive, it's not a moral failing, it's covid brain. Your brain is in (extended slow-burn) survival mode, so it shunts effort (and blood flow and stuff) away from things like higher-level thinking / planning / etc and towards staying alive, and if you're feeling less creative it's because your brain is putting all your creative muscles towards staying alive, and if you're sleeping more it's partly because your brain is burning energy much faster than usual. Etc.

I just realized: combine that with my realization a few months ago that I've basically been living with impending uncertainty for years, much longer than the pandemic, and that aide stress/uncertainty and health stress/uncertainty has probably been fucking with my brain

and you get a major dose of "why the fuck am I surprised I can't write"

Especially since typing is hard (can't physically access keyboard for touch typing, computer typing is done by mouse and onscreen keyboard which is painfully slow, phone and tablet typing is done with thumbs and a lot of typos (and autocarrot) and is faster but more prone to error) and ... ... yeah.

I mean, I'm also getting fewer ideas, definitely fewer "this story is basically writing itself" / "this story is requiring that I write it, and won't leave me alone until I do" stuff, but it's not that I don't have any (I was going back through my "fic I'm not writing" tag and found fairly recent stuff I'd forgotten about). It's just they don't get written. Or I write the sort of thing I call a fic sketch where it's not really fleshed out (or even necessarily grammatical) but has the important bits, but don't have the energy to go back and finish it.

But.

If, in survival mode, brains are less good at thinking and being creative--

--and if I've been in survival mode pretty much for years--

--well, *fuck*.
ysobel: (Default)
Several of my Ravelry forums have a thing where you can declare "thread bankruptcy", usually with fast moving chatter threads, which basically means "I'm so far behind on this thread that I have no chance of catching up so I'm just going to start reading/interacting here, and I know I may have missed things but I'm not ignoring on purpose"

I realized that part of why I have trouble re-engaging with Dreamwidth peeps is that I'm so far behind (at least a year now, aside from random spurts with individual journals) that the backlog is overwhelming, but I feel obligated to catch up old stuff before I start reading regularly. But there's no way I'm going to catch up with everyone I care about.

So I'm declaring "Dreamwidth bankruptcy". I'm going to pretend there is no backlog, and just start fresh.

If there are things that have happened in your life that you want me to know, or that is important in your life, please comment! You don't even need to go into detail (if you give me clues of when to look in your journal, I don't mind specific archive-diving). I care about y'all, even though I've been quiet 💜

My version of catching y'all up--

Health

I have new bone growth in my back, which is slightly changing the position of my left arm -- there wasn't any mobility in any of the joints (shoulder or elbow) but there was some amount of flexibility in the shoulder blade, and that's changed so my arm is somewhat more retracted. It makes things like holding my choir iPad, or crocheting and knitting, harder and more awkward.

(It's also painful, especially when it presses against the chair back or the sling I use for transfers. My right hip and thigh are also super cranky because of bone buildup. Turns out having lots of extra bone where it doesn't belong tends to be painful, who knew.)

I also had a really craptastic couple of weeks starting just before Thanksgiving. I don't know how much was FOP, how much was atypical stomach bug, how much was maybe atypical migraine, and how much was atypical UTI. Details, including some amount of tmi, under cut...

Read more... )

Teal deer = the last month or so has SUCKED healthwise. But I'm alive, so yay.

Pets

Fur family is still good, even though they're getting older -- both Yahtzee and Monkey seem more inclined to snooze than be active. Loki is a dork face, as per usual.

And speaking of: I'll do a proper post about this, but I am getting a puppy (PUPPY!!!) to train up as a new service dog. Er, obviously I can't do puppy myself, so am hiring a puppy raiser + trainer, but it's super exciting. Litter is eight weeks old, English (cream) golden retriever, absolutely freaking adorable.

Other stuff

Mental health issues (depression and anxiety) are still problems, though Impending Puppy is a decent antidepressant (except when I'm being anxiety-flaily about all the things that could possibly go wrong). And I've found a new phone app, Woebot, that is a robot that does CBT exercises with you; it's pretty awesome.

I somehow managed to maintain my Duolingo streak even with being sick (there was one day I missed, but streak freeze caught it). It's a crazy high streak. I'm mostly just idly refreshing Spanish, but not with any major effort.

Haven't done much crocheting or knitting lately. (Scary thing about zombie week: I was so sick I didn't care about yarn. Not just didn't have the energy to even fondle yarn, let alone work with it, though both those were true, but didn't even care about it. I'm pretty sure someone could have come taken my entire stash and my reaction would have just been "...whatever". Of course, I'd've been pretty miffed once I recovered, but.)

Haven't done much writing, either, though a few of my story wips (especially "no-magic-cure variant of Secret Garden" and "disabled Beauty and autistic Beast") are still rattling around in my head.

And ... um ... think that's it. Cookies for anyone who read the whole thing!

What's up with y'all?
ysobel: (Default)
so earlier tonight I was going to write up this thing about how getting to see my mom's new (rental) house today was giving me Teh Sadz because I likely won't ever have a house and normally I'm okay with just an apartment (and i don't really need more because not a family) but it's just part of this Life that I expected as a kid that I would have -- to a five year old (especially growing up in the early 80s) that's just the way things are, you grow up and get a job and get married and get a house and kids and maybe a dog, but the only part of that I have is the dog, and the reality of moving into a new house is not the same as the romanticized Hollywood fantasy of moving into a new house, but I still ...

--but I just could. not. keep my eyes open. At all. It was only like 8:30, which is a time I'm usually in bed but nowhere close to going to sleep, but I just couldn't; and I tried listening to an audiobook but couldn't keep track; and I so I listened to music instead while drifting in and out, really more out than in. And now it's 2am and I'm half awake again and my lungs feel oddly heavy like I'm about to get sick, and I *really don't want to get sick* argh

hoping it's just "feeling slightly off because weird sleep schedule" and not because getting sick

it would also be nice if I could actually get solidly to sleep, not the in-out thing...
ysobel: (Default)
chair is still not fixed

don't have aides yet (and the one that's quitting has her last shift wednesday, plus the one that isn't having cataract surgery in the next couple weeks)

my brain is alternately BSOD-ing with anxiety and diving into defeatism and suicidal ideation

(disclaimer: I am physically safe & have a support team. but sometimes I just want to give up and let the brainweasels win)
ysobel: Charles Xavier, fingers at temple, doing his Inside The Mind thing (xmfc - charles)
This is kind of stupid, but

I'm watching a movie with James Macavoy

and getting super nostalgic about, like, early xmfc fandom and all the feels and stuff

and, like, I can't get back to that -- for one thing the follow up movies, half of which I haven't even seen, changed the landscape of the fandom; for another, there isn't the same enthusiasm that there was; for a third I can't fucking write any more -- and it just

I can't tell how much of my heartache right now is because of the Doomed Romance Of Charles And Erik (and how very pretty James looks when his character is Having Feelings) and how much is because I used to be so much better
ysobel: (Default)
The last couple of days have been ... miserable.

Yesterday I got tired of my iPad (which I mostly use in bed) nagging me about updating the iOS, so I backed it up and then tried to update. Which required updating iTunes first, rebooting the computer, and *then* doing the iPad update.

...except it wouldn't. It stalled out and gave error 2003, and meanwhile the iPad was stuck in recovery mode, therefore unusable.

Cue google searches and various unsuccessful attempts to get it working.

Three hours later, literally in tears, I called Apple support, who said that 2003 was an odd error message (it was in the range of USB errors but not one of the usual ones. He suggested rebooting the computer ... which of course decided that was the perfect time to apply updates ... and when it finally got in my control and I went into iTunes, updating of course still didn't work, so he said maybe try a different cord, or else bring it in to an Apple Store for help.

...the closest Apple Store (I have no idea why my autocarrot is capitalizing that) is in Sacramento.

I didn't have a spare cord.

My dad probably did, but wouldn't have been able to come until today. And while some usage of the iPad is optional (reading, Netflix, games, etc) i really really need music to help me get to sleep, since it gives me something other than brainweasels to listen to. And boy howdy were the 'weasels active, because of how "I" fucked up the iPad.

At this point -- around 8pm, well after I'm usually in bed (because it's way more comfortable than sitting upright) -- I was pretty much in meltdown, and hating myself for it, because it’s such a first world problem and most people sleep perfectly fine without iPads. Not that hating myself did anything helpful like stop me from crying.

My evening aide offered to have her ... er, gentleman friend ... run out to Walmart (which is about 25min drive away but it's open 24/7) and pick up some cords. I was desperate enough to say yes; and of course I couldn't go to bed because I needed to be able to sync up the iPad once the cords got here, and there was a good chance it would require my Apple ID password.

Hour (and some chocolate) later, cords arrive. And they work. But at this point the iPad is fucked up enough that it required full reset to factory defaults and then restoring from backup.

OS installs correctly. Backup requires my password, then starts ...

...time remaining: one hour.

:sob:

I finally got to bed at 11:30, and then had to do all the stupid "new"-iPad setup before I could get to the music. Plus I was in post-meltdown crap mode that "naturally" included suicidal ideation and then hating myself for getting that upset over a stupid tablet.

It was maybe 2:30 before I got completely to sleep.

...meanwhile, to add insult to injury, the yarn I was using for the newest project wasn't enough to complete the project, and the sensible thing is to start over with a different green yarn that I have, but I really just wanted more of the yarn I was already using. So I did end up ordering it today as a reward for surviving yesterday. It’s stupid but at least the thing I’m making will be cute. (its a cactus bunny. I am in a cactusy mood.(

Today hasn’t been fun. I’m more tired than usual, and kind of in meltdown hangover. And not all of my games are behaving; one is treating me like a new player, and I tried logging in with the various sets of passwords I use for mobile games in combination with the three emails I might have used but nothing worked. It’s not one I spent money on, so I could theoretically just start over, but losing progress and starting over is just ... discouraging.

(And there’s one game I still miss that flat out won’t work in os11 because the app is too old and un~updated. There’s a different app with a similar concept but instead of being a daily free puzzle it’s done as packs, some free and some that you buy, and it’s just less fun that way. Sulk.)
ysobel: (Default)
So, dress rehearsal tonight for choir concert tomorrow. Kind of important.

About ten minutes in, I get brief stabbing pain in my stomach, and then a few minutes later, waves of abdominal pain. Not quite "I'm going to throw up from the pain" levels, but "plan route out of here just in case I do need to throw up".

It is really fucking hard to sing -- which involves diaphragm support and, yanno, abdominal muscles -- when it feels like something is stabbing you in the abdomen.

tmi somewhat )
ysobel: Artwork of a curled-up stick figure trying to stave off crushing darkness (depression)
Ugh.

Too much shit going down right now.

CW: pet death (not mine)

Read more... )

and on top of all the aide shit (for those not on my access list, short version = getting into a screaming fight sunday that included lies and gaslighting and emotional manipulation (incl textbook DARVO) on my aide's part, subsequently firing said aide and changing locks and dealing with emotional rollercoaster aftereffects) I'm just

a complete mess

(understatement)
ysobel: (Default)
So because I can't feed myself ice cream, and because I'm weird and awkward about asking other people for help, when I have a tub of ice cream it tends to sit around for a while before getting finished off.

Tonight I was still hungry after dinner so I decided to polish off the coffee ice cream that had been in there for a while. And, er.

It was liquid.

Not melted. Cold. It wasn't even in the freezer door where it might have been only semi frozen. It was in the middle of the freezer. Amidst frozen stuff. And it was cold the way just out of the freezer ice cream should be--

--and it was *liquid*. Runnier than milkshakes. The consistency of room temp ice cream.

I had a confuzzled, but ate it anyway. Because ice cream.

Now, a few hours later, I'm starting to get nervous about what if it had gone bad and that's why the texture was weird, what if I get sick from it, what if I wake up at 2am vomiting, what if what if what if. (The fact that it tasted fine doesn't necessarily mean much; once I drank an Odwalla beverage that was a few days out of date but refrigerated and normal tasting, and that evening was throwing up from it, because bacteria don't always taste bad.)

Googling didn't help. Googling rarely helps when the question involves getting sick.

Gah.

...huh

Dec. 13th, 2015 06:04 pm
ysobel: (spirituality)
It's kind of weird / disturbing / perplexing just how hollow and unemotional I'm feeling about Advent and Christmas this year, at least religiously. It's sort of the same disillusionment I've been having with Easter the past few years: the message is "the world is depressing and full of sin but ~yay Jesus~" and the first part is still true but I'm so not feeling the second half. There's only so many times that you can be told (twice a year, even) that Hope Is Coming and have nothing happen but the same dreary everyday reality, before you stop believing.

I think it says something that lighting Hanukkah candles this last week was more fulfilling than the advent concert my church did.
ysobel: (Default)
urgh

bowels decided to threaten to explode (assplode?) in agony ... *after* morning aide left

(and I don't just mean urgency, we're talking sobbing-and-hyperventilating agony on top of urgency, like there's a bowling ball in there)

of the aides that live close, one "almost cut my finger off last night, i can come do it one-handed, or if (other aide) can do it i should probably go get stitches if it's not too late"

(...)

other aide is at IHSS orientation so she can get paid

stepmom is driving me to an appointment today, so I asked if she could come early

"earliest I could do is noon but 12:15 would be better"

that's when we need to leave

"oh right"

...sob

and some people think "woe I can't walk" is the worst part of being disabled and in a wheelchair ...

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masquerading as a man with a reason

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