Jul. 21st, 2009
Fun with being disabled/dependent
Jul. 21st, 2009 05:59 pmFor those of you just joining us, I am severely disabled, to the point of being literally immobile, both actively and passively, except for, uh, my fingers and my jaw and, sort of, my wrists. I can use the computer fine -- technically, it's not ideal, since if I have one hand on the keyboard the other can't reach, which means I'm typing with my left hand on the keyboard (but at a slightly weird angle; the finger position I learned for home-row keys, ASDF, would get me WQDF instead) and my right hand using a stick. My typing speed is reduced from what it was with two-handed normal touch-typing, and I make a lot more typos, but nevertheless, the point remains that I can use the computer without someone else here to help me. But pretty much everything else -- including dressing, bathing, food preparation, and going to the bathroom -- I can't do, which means someone else has to do it.
It is really fucking hard to find people that are willing to fit the schedule I need. It would be one thing if, like, I needed an hour or two in the morning for dressing + housecleaning; but what I need is, most of the time, ten-minute visits every few hours.
Right now I have three aides. One (B) has a dayjob, so does evening stuff and alternate weekends. One (D) covers morning/daytimes and alternate weekends. And one (C) moved in with me a few months back (I needed a live-in aide, she needed a place to stay) and does meals and overnight or emergency toileting as-needed.
A couple of weeks ago, D started complaining about numbness in her left hand, along the pinky side. I, having had ulnar nerve problems, promptly said "That's an ulnar nerve problem. Go see a doctor." Which she did, eventually, at the point where her whole hand was numb; this was last Tuesday. And the doctor told her not to use her arm, and so she said "I need a week off, starting, um, now", and so I said "okay" and arranged to have C do the daytime stuff.
Monday morning, D shows up, ready for work. I'm kind of wtfing at her, partly because I hadn't known she she was coming, but mainly because it didn't seem sensible (there were plenty of "are you *sure*?" type questions) but hey, it's her decision. She was wearing a wrist brace -- though it looked more like one for carpal tunnel, especially as it had the thumb immobilized -- which made some things awkward, but ... well, really, I think she was going stir-crazy. (She has no hobbies as far as I know, isn't a reader, etc. And she goes stir-crazy even when she *is* coming over every few hours.)
Today, she had a doctor's appointment. And guess what? The doctor told her ... that she shouldn't be using her left arm.
This ... is shocking to nobody except her.
(At least I *have* C to cover daytimes etc. For a long while I only had D and B, and due to dayjob B can't cover daytimes, and so that ... would have been bad.)
It is really fucking hard to find people that are willing to fit the schedule I need. It would be one thing if, like, I needed an hour or two in the morning for dressing + housecleaning; but what I need is, most of the time, ten-minute visits every few hours.
Right now I have three aides. One (B) has a dayjob, so does evening stuff and alternate weekends. One (D) covers morning/daytimes and alternate weekends. And one (C) moved in with me a few months back (I needed a live-in aide, she needed a place to stay) and does meals and overnight or emergency toileting as-needed.
A couple of weeks ago, D started complaining about numbness in her left hand, along the pinky side. I, having had ulnar nerve problems, promptly said "That's an ulnar nerve problem. Go see a doctor." Which she did, eventually, at the point where her whole hand was numb; this was last Tuesday. And the doctor told her not to use her arm, and so she said "I need a week off, starting, um, now", and so I said "okay" and arranged to have C do the daytime stuff.
Monday morning, D shows up, ready for work. I'm kind of wtfing at her, partly because I hadn't known she she was coming, but mainly because it didn't seem sensible (there were plenty of "are you *sure*?" type questions) but hey, it's her decision. She was wearing a wrist brace -- though it looked more like one for carpal tunnel, especially as it had the thumb immobilized -- which made some things awkward, but ... well, really, I think she was going stir-crazy. (She has no hobbies as far as I know, isn't a reader, etc. And she goes stir-crazy even when she *is* coming over every few hours.)
Today, she had a doctor's appointment. And guess what? The doctor told her ... that she shouldn't be using her left arm.
This ... is shocking to nobody except her.
(At least I *have* C to cover daytimes etc. For a long while I only had D and B, and due to dayjob B can't cover daytimes, and so that ... would have been bad.)
(no subject)
Jul. 21st, 2009 10:18 pmSo one of my goals right now is to learn Bulgarian. And as there are no classes around here, and no audio or book resources in the library, and sources such as this and this are not things I can really afford, I will be basically studying by internet. Which I'm sure means my pronunciation will be slightly wonky but that doesn't really matter.
I also want to keep a record of what I'm doing, both so I can go back and look things up and so I can prove to myself that I'm actually making progress. I expect it to be of little interest to anyone else, but. It might be. *shrug* So, poll!
I also want to keep a record of what I'm doing, both so I can go back and look things up and so I can prove to myself that I'm actually making progress. I expect it to be of little interest to anyone else, but. It might be. *shrug* So, poll!
Poll #815 Fred
Open to: Registered Users, detailed results viewable to: All, participants: 22
Want to be in the filter of bulgarian nubletness?