ysobel: (me)
[personal profile] ysobel
There was one point, shortly after I was diagnosed with FOP, that I learned that the worst cases of FOP left everything immobilized except fingers and face muscles. At the time I was horrified, since I still had decent mobility, but then I figured it was only the worst case scenario and maybe I'd get lucky.


Turns out, fingers aren't at all immune. I kept meaning to document the restrictions -- more so now that within the last year my left index finger has gotten affected. So here's the current state of my left hand:

(Right hand is in better shape -- the base of the thumb is locked, the pinky is crooked and bent and doesn't straighten, and the tipmost joint of the index finger is mostly fused, but I can clench a fist okay.)

Date: 2017-06-01 01:40 pm (UTC)
0jack: Closeup of Boba Fett's helmet, angular orange stripe surrounding a narrow window on a greenish metallic field. (Default)
From: [personal profile] 0jack
It does suck. :|

I just went and watched your other videos, too. I remember you working out ways to knit and crochet a few years back but it was really interesting to see it in action. I should see about getting back to my huge entrelac shawl that's languishing thanks to some brain issues. :p I always forget that one can do the same thing for brains as one does with bodies -- a work around or adjustment. We shall see.

Hope you're feeling better than you were last week. :)

Date: 2017-06-02 02:23 am (UTC)
jesse_the_k: my God being a physical being is such total baloney in typewriter font on crumpled paper (physicality stinks)
From: [personal profile] jesse_the_k
FOP sucks.


ysobel: (Default)
masquerading as a man with a reason

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