This last week, ugh
Aug. 11th, 2023 10:48 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
Content note: medical stuff, not too graphic. Also part of the entry mentions food intake, and references to a previous medical recommendation re calories, but there will be a cut for that.
Sunday evening I crashed right after going to bed, which I thought was just a worse than usual version of the mini-crashes I figured out were Probably Autism, but those I usually perk up from, and this ... not so much. By Monday it had rolled into headache plus nausea plus fatigue plus brain fog plus chills plus light/noise sensitivity. I did a COVID test (negative) and then just tried to survive the day.
...which turned into week...
Tuesday I took my last imitrex but it was out of date. By afternoon the nausea was worse to the point of throwing up multiple times, and then after I went to bed the chills shifted to epic sweating (soaking pillows and sheets within 3 hours). Also I'm pretty sure I hallucinated a smell at one point? Spicy sausage gravy, when no one was cooking? ...anyway. Since then things have been slowly getting better but my appetite has been off, my capacity to eat/drink has been off, temperature self-regulation has been wonky, energy low, and still the sensitivity to light and sound and still headache -- though oddly intermittent and pretty low-key, thank fuck. (I have brain fog but not the pain so strong it's overwhelming.)
I have looped my doctor in, yes. Not until today but I kept hoping it would just go away. I also seem to have ingrained a "feeling shitty is just something you endure" thing where I don't want to bother my doctor (and things like medication don't occur) that I need to poke at sometime.
Here's where I start talking about food, and calories are not specifically counted but I add snark about a previous doctor recommendation that suggests it. Feel free to skip. If you are on the entry page where there's no cut, skim for bold text.
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Monday: Couldn't finish breakfast (2 egg simple omelet with toast) at first, had to wait 20ish minutes to finish. Lunch was single-serving container of applesauce (after this just "applesauce"). Dinner was light normal (chicken and rice and peas)
Tuesday: breakfast was just applesauce. No lunch, vomited, eventually tentative amount of rice. Small bowl of soup for dinner.
Wednesday: applesauce for breakfast, single-serving greek yogurt for lunch, bowl of soup for dinner.
Thursday: 2 eggs scrambled for breakfast, half a thin peanut butter sandwich for lunch, dinner was normal size but the chicken inexplicably tasted weird so I mostly didn't eat it, just the rice and vegetables
I don't remember today, but I'm eating more than just a small container of applesauce. Which is so not a meal. But I just... my stomach kept saying no. And then it would be cranky and I didn't know if it was hunger or nausea or both.
I also couldn't get much drunk... even though I knew I was dehydrated. I'd have like two sips of water and then my stomach would say "no more".
At some point it occurred to me that... last year during the jaw flare-up, one of the FOP specialists (over a video call) told me to do a caloric inventory of my diet and cut it by 10%. It occurred to me with rather bleak amusement that he would be all "yes good job!" (I don't think he actually would, but also it's bad when "we'll this is probably one way to lose weight" jumps into my head... I have so many issues there. But not for this entry, which has already taken 90 minutes to type up!
Fuck that anyway.
.
.
.
.
.
okay done
I think/hope I'm trending upward at this point. Don't really know though.
Sunday evening I crashed right after going to bed, which I thought was just a worse than usual version of the mini-crashes I figured out were Probably Autism, but those I usually perk up from, and this ... not so much. By Monday it had rolled into headache plus nausea plus fatigue plus brain fog plus chills plus light/noise sensitivity. I did a COVID test (negative) and then just tried to survive the day.
...which turned into week...
Tuesday I took my last imitrex but it was out of date. By afternoon the nausea was worse to the point of throwing up multiple times, and then after I went to bed the chills shifted to epic sweating (soaking pillows and sheets within 3 hours). Also I'm pretty sure I hallucinated a smell at one point? Spicy sausage gravy, when no one was cooking? ...anyway. Since then things have been slowly getting better but my appetite has been off, my capacity to eat/drink has been off, temperature self-regulation has been wonky, energy low, and still the sensitivity to light and sound and still headache -- though oddly intermittent and pretty low-key, thank fuck. (I have brain fog but not the pain so strong it's overwhelming.)
I have looped my doctor in, yes. Not until today but I kept hoping it would just go away. I also seem to have ingrained a "feeling shitty is just something you endure" thing where I don't want to bother my doctor (and things like medication don't occur) that I need to poke at sometime.
Here's where I start talking about food, and calories are not specifically counted but I add snark about a previous doctor recommendation that suggests it. Feel free to skip. If you are on the entry page where there's no cut, skim for bold text.
.
.
.
.
.
.
Monday: Couldn't finish breakfast (2 egg simple omelet with toast) at first, had to wait 20ish minutes to finish. Lunch was single-serving container of applesauce (after this just "applesauce"). Dinner was light normal (chicken and rice and peas)
Tuesday: breakfast was just applesauce. No lunch, vomited, eventually tentative amount of rice. Small bowl of soup for dinner.
Wednesday: applesauce for breakfast, single-serving greek yogurt for lunch, bowl of soup for dinner.
Thursday: 2 eggs scrambled for breakfast, half a thin peanut butter sandwich for lunch, dinner was normal size but the chicken inexplicably tasted weird so I mostly didn't eat it, just the rice and vegetables
I don't remember today, but I'm eating more than just a small container of applesauce. Which is so not a meal. But I just... my stomach kept saying no. And then it would be cranky and I didn't know if it was hunger or nausea or both.
I also couldn't get much drunk... even though I knew I was dehydrated. I'd have like two sips of water and then my stomach would say "no more".
At some point it occurred to me that... last year during the jaw flare-up, one of the FOP specialists (over a video call) told me to do a caloric inventory of my diet and cut it by 10%. It occurred to me with rather bleak amusement that he would be all "yes good job!" (I don't think he actually would, but also it's bad when "we'll this is probably one way to lose weight" jumps into my head... I have so many issues there. But not for this entry, which has already taken 90 minutes to type up!
Fuck that anyway.
.
.
.
.
.
okay done
I think/hope I'm trending upward at this point. Don't really know though.
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