ysobel: (Default)
Feeling very Not Myself today... partly a migraine hangover from yesterday, partly one of those days where little things kept going wrong, partly I don't even know what. Very crappy mood, sort of angrily despair-hate for no reason. Stuff that's similar to brainweasels I get but on steroids and just kind of Off. Spent the day half crying half reading (books not Twitter for a change). I wanted to just turn myself off until tomorrow. Like I'd gotten up wrong somehow. (The fact that 2/3 of today's shifts were a caregiver I don't particularly like and find annoying but can't afford to not have her, didn't help.)

Are there, like, medical reasons why moods can tank abruptly? Like, I know utis in old people can present like dementia. Or maybe it's just migraine exhaustion idk. Bet if I checked WebMD it'd suggest brain bleed and/or hangnail...
ysobel: (Default)
Not sure exactly what triggered this, but I just remembered a scene from my dreams last night: I was at choir rehearsal, and a friend from college showed up for the first time because at the beginning of the quarter (this was a college based choir apparently, and a director I don't recognize after the fact, not a director from my personal history) I'd suggested she join, and she'd finally decided to take me up. Only, we were like two weeks shy of concert date, so director dude stopped the rehearsal and called her into the hallway outside. When they came back, she'd obviously been crying, and I was utterly miserable on her behalf as she took her bags and left, having clearly been told she couldn't join that late.

I don't like embarrassment, either mine or someone else's, and that apparently extends to dreams.

Dear brain: things are stressful enough right now, I don't need you making things worse...

Whoa

Aug. 10th, 2021 10:17 pm
ysobel: (Default)
I'm actually in a good mood.

Not just coping, not just okay-ish, but actually good.

I'd almost forgotten what that was like,

(I strongly suspect that getting Reiki today -- first time since march 2020 -- helped a lot. Like, by 'a lot', I mean holy fucking crap I actually feel halfway human again *and I didn't this morning*.)

(...Cookies helped too. Also getting Fallout 4 GOTY for $10 on Steam. But those weren't desperation retail therapy, like some of my pandemic-era purchases have been, a hollow attempt to fill an infinite void within.)

I knew Reiki worked (for me) but. Wow.
ysobel: Spock from Star Trek XI, looking down, face half shadowed (Reboot - Spock)
I'm lying here listening to wrath of khan soundtrack and having All The Damn Feels.

Kinda afraid to watch the new trek series because I get the impression it includes Spock (spoilers )) and I'm afraid they'll mess things up more -- I liked the 2009 Trek AOS but the sesquicentennial
I'm not sure why my tablet thought I meant that instead of sequels .... sequels not so much, and I've ridiculous amounts feels for TOS Spock and so it's like teenager me being all heart-eyes inside and I don't want them to ruin that because teenager me has so few things remaining

and wrath of khan -- plus the sort of trilogy that is WOK/SFS/VH (whales!) -- is solidly my favorite trek movie

I miss my writing and the trek fics I had going
I miss 2009
I miss me
I miss
...
ysobel: (Default)
why today is exciting, part 27: sat on toilet in a way that had the hip/thigh bone growth twanging my sciatic nerve like a banjo string

there may have been Language

(part 26 involved finding out one of the caregivers I'm training just had her housemate test positive for covid)

(part 25 is the PA political shitfuckery)

(I just kinda ... can't)
ysobel: (Default)
2021 is not getting off to a great start.

My aide S, who's been doing 90% of the shifts because all the students are gone (and even with the students was doing half the shifts) .. got hit by a car last night while walking her dog, & is now in the hospital with broken foot and ankle. And has to deal with police shit because it was a hit and run.

Luckily my roommate is here and able to cover, but.

I keep going from 'okay' to random crying. Can't tell how much is for S and how much is for me and how much is just Emotions Suck.

(Also sigh at my mom. She's physically unable to do the commode chair stuff, so she can't help me out in that way. In the group text with her and my sister I said I wouldn't be able to do the family video chat today, explained what was going on and that I was scrambling to get aide coverage, and literally said "there's nothing either of you can do to help aside from not asking a lot of questions, I'm just letting you know". So of course my mom insists that she could help with aide stuff... then texts me to ask if I'll need her help today... I know she wants to help but I don't need to deal with managing her as well...!)
ysobel: (Default)
A) last night I wrote a breakup letter to rav, just to get my feelings out. My feelings are less intense today, possibly in part because of the third thing, but I went ahead and made it public anyway: https://ysobel.dreamwidth.org/600530.html (sorry, too lazy to bother with html right now)

B) I have updated the post before that with text of the terrible horrible no good very bad missive that triggered the latest round of firestorm, in case anyone needs it. I'm sorry it took me so long to do that.

C) Jess (aka mama rav) has posted a letter on Ravelry that is an actual fucking apology. It's not perfect (seizures and migraines are not "anxiety") and I wish it had come five weeks sooner, but it's a good start. I remain skeptical that there will be enough useful changes to let me keep using rav once Classic goes away, but I'm also feeling hurt and cynical right now. (Rav as a whole does not have a good track record with access and visual issues.)

D) I'm not going to delete my account. There is too much of my life there, and too much of my knitting knowledge. But as I have the time and energy for it, I will be writing blog posts with some of my various knitting knowledges -- things like stitch mount and decreases, charts, lace charts and decreases and markers, möbius structures, my pet peeves in pattern writing (things like "each end" and "knit to X stitch" and whatever else), why yarnover video tutorials are misleading, etc etc etc -- so that it's not just on rav.

E) for that matter, I'm not abandoning rav. Yet. I have too many friends there, too many important people that I don't really have other ways of engaging with. But I feel seriously burned by this whole thing. (I'm sure rav tptb are ... more than burned, probably; charred? ... for different reasons.) Jess taking the wheel is a good start, and to some level my heart hurts for her (having to put out fires and keep rav from imploding and also support her wife through what's probably some serious shit) and I really hope she and Cassidy both have a good support network in place right now. But my heart hurts more for all the people who can't use rav because of NuRav, especially the people who had fucking seizures, who were then called liars; and it hurts for the designers who relied on rav as a central selling platform and now in some cases don't know whether they can or should.

F) I breathe in other peoples' pain; I breathe out a sense of comfort for them. Pain in, comfort out. It's a form of meditation (tonglen, I think, is the name in Buddhist traditions). I don't know if it works but it makes me feel less helpless, and also makes my heartache (and physical pain) more meaningful if part of it is a shared burden from other people.

G) what am I doing up, it's after midnight argh. Go to sleep, self.
ysobel: (Default)
So many complicated emotions right now.

1. Bluprint (aka what used to be Craftsy) is offering free classes right through the 16th, but some of what I'm watching makes me sad because mobility restrictions mean I can't do those things any more. Also because drawing-related tutorials (which is what most of yesterday was) are like "then you take this pencil and make a line exactly here and you have a photorealistic animal portrait" and my artistic ability is barely above stick figures. (But I can hardly practice, because mobility.)

2. I realized yesterday that I literally hadn't been outside for two weeks, and that wasn't great for my mental health. So today I donned a mask and went for a walk. Yay? Saw turkeys... they weren't social distancing, lol.

3. Went on fb for the first time in a few days and found out another FOP person has passed away, someone who was only 15. I wasn't really close to her, but it's always weird to lose someone from the community, especially suddenly. And I can't imagine what it's like to have your daughter die ... well, at all, let alone in the car on the way to the hospital. ...I used to think I wouldn't live to be 30, then that I wouldn't be 40. There are older FOP people, but then things like this happen to much younger people. (It wasn't covid, apparently.)

4. I'm having trouble keeping up with any of my social groups. Here, on rav, on fb, anywhere. It's not that I don't have time, but just the ... I don't know, emotional reservoir? Capacity? Something? ... to even read, let alone interact. And I feel like a horrible friend because I don't know what's happening in anyone's lives.

5. I hate that for health reasons I should be more isolated but for essentially the same reasons I can't, because I have to have aides coming in multiple times per day. So I have constant exposure -- and also constant imposition on my introverted self, which means constant exhaustion. Mrgh. I'm glad I have the support I need? But I really really wish I didn't need it in the first place.

6. Caved and got Disney+. Disney and Pixar and Marvel and Star Wars and NatGeo. So much to watch!
ysobel: A bunny (bunny comics), on fire (on fire)
February is sucking so hard, so far.

Sunday night: aide called in sick. I got her shifts covered.

Monday: *deep breath* lessee. A different aide let me know she can't do Thursday nights any more. I had the *stupidest ever* appointment that required an hour total of driving, and fifteen minutes of waiting, just so that they could confirm that my cpap machine, which has been giving "motor life exceeded" errors, had in fact exceeded the recommended motor life. (It's normally replaced every five years, and I'm 9 months short of that, but I'm in bed 14-16 hours most days, and the cpap is running the whole time.) They didn't replace it (this was one step in the process of getting an early replacement) but it was complete BS.

And then there's the Chess saga, wherein he had to go in for surgery for intestinal blockage that turned out to be a *foot long stick* wtf I can't even fathom how he got that down. And while they were doing the surgery they discovered that it had rotated in a bad direction and punctured his stomach. So ... not good. He stayed in ICU overnight, and will be in the hospital a few more days, but full recovery will take longer. He IS doing better now, eating and wagging his tail and rolling over for belly rubs and generally charming everyone there.

(The trainer feels horrible about this, which on the one hand I can completely understand, and puppies will puppy and things happen and she didn't do this on purpose, but there's also a part of me that's like "(grumpycat) GOOD", because augh. SHE BROKE MY DOG, only not really, and he IS healing and it will be okay, but... yeah. And of course this is not going to be cheap (per the contract, she covers basic vet stuff and wellness checks and shots, but we cover any emergency issues) but more I'm just ... flaaaaail.

And Monkey has a UTI and has to get oral antibiotics, which means she's spending lots of time in impossible-to-reach places; and Yahtzee has something going on with his eye that needs him to go to an animal ophthalmologist. Both of which are technically January things but they're affecting February. And the ophthalmology guy my vet recommended had an appointment at 9:30 Friday morning, and is otherwise booked for a month out (the Friday thing was a cancellation), but he's half an hour away WITHOUT factoring in traffic, so I'm going to have to get up hella early compared to my usual.

Today: Got an email from Netflix that was all "we have changed your email as requested; you will no longer be able to use (email) to sign in. If you didn’t request this, click here to contact us". Felt very phishing-y, so I didn’t click on anything in the email. But I did go to sign in just to make sure I still could. And ... "we couldn't find an account with that email address". So I had to call them (still not clicking the email link because paranoid, but found their contact info a different way) and after confirming the last 4 digits of credit card to prove it was me, they changed my email back and sent me a reset-password link. Did that and also linked up my phone as a secondary source of authentication. But fuck, have no idea how someone got into my Netflix account...

...

I ... may be consuming rather a lot of sugar and carbs, the last few days. Stress eating. Not good for my body probably, but good for my mental health.

I'd really like things to *stop sucking*.
ysobel: Charles Xavier, fingers at temple, doing his Inside The Mind thing (xmfc - charles)
This is kind of stupid, but

I'm watching a movie with James Macavoy

and getting super nostalgic about, like, early xmfc fandom and all the feels and stuff

and, like, I can't get back to that -- for one thing the follow up movies, half of which I haven't even seen, changed the landscape of the fandom; for another, there isn't the same enthusiasm that there was; for a third I can't fucking write any more -- and it just

I can't tell how much of my heartache right now is because of the Doomed Romance Of Charles And Erik (and how very pretty James looks when his character is Having Feelings) and how much is because I used to be so much better
ysobel: (Default)
One of my dreams last night evoked a feeling that I have been trying all day to remember, with very little success.

I don't remember the imagery from the dream -- something about coming home after a war, something about the I-character being a prince -- but it's not the imagery I care about. It's the emotion. I can't remember. It was partly like -- oh, I don't know, like a newly crowned (and mostly still school aged) King Peter coming howm to Narnia after his first battle as king; it had elements of Harry returning to Hogwaets after winning some external tournament for Gryffindor (why Gryff in particular and not Hogwarta as a whole I don't know, and the not that sticks out was people back at the castle waiting, like in a Greek myth, to see which color sails adorn the ship, so someone could run back with news of the winner, which makes no sense in a world with magic, but again the visuals don't matter.

And I can't quite remember the emotion.

I think -- in the way you can sometimes remember the shape of a word without remembering the word itself -- it had the shape of a sort of nostalgia, like coming back as an adult to places you frequented as a kid (and things are so much more small and ordinary when you see them with adult eyes). But also a bit of ... deliberate loss? Of having gone to do the thing knowing you'd be changed by it and knowing that you'd never get innocence back, watching kids be kids and being unable to join in because you know too much. And some element of disconnect, like you've been off fighting a battle in Faerie and return triumphant to find that a hundred years have passed overnight and they're really quite happy that you won but you don't know them because they're the great-grandchildren of your baby brother or whatever, and you can't get the missing years back.

Those are the pieces I can remember, but ... echoes, not the source. It's more than that and *I don't remember*. And the more I try, the less I grasp.
ysobel: Artwork of a curled-up stick figure trying to stave off crushing darkness (depression)
Ugh.

Too much shit going down right now.

CW: pet death (not mine)

Read more... )

and on top of all the aide shit (for those not on my access list, short version = getting into a screaming fight sunday that included lies and gaslighting and emotional manipulation (incl textbook DARVO) on my aide's part, subsequently firing said aide and changing locks and dealing with emotional rollercoaster aftereffects) I'm just

a complete mess

(understatement)
ysobel: (Default)
Well fuck. Talked with a cpap tech, who said a) there is no larger strap, b) there are no other nasal pillow style masks for me to try, and c) b doesn’t matter because the exchange was a one time thing, not a repeated offer. (I could get a new mask with cash pay, but nothing covered by insurance.) My option is basically “give it more time so the straps stretch out a bit”.

I want to cry.

(I don't know whyfor the crying, except I'm just over-overwhelmed right now. But of course my afternoon aide just showed up so I can't actually cry.)
ysobel: (Default)
Network page linkhopping led me to http://musingsofanaspie.com/2013/01/31/emotional-dysfunction-alexithymia-and-asd/ and, uh.

Because, I recently realized, I don’t discriminate between anger that is aimed at me and anger in general. When someone is angry, I invariably feel like I’m the cause or the target, even when I rationally know that I’m not.

If The Scientist calls me after a bad day, I hear how upset he is and immediately feel distressed. Not distressed as in “I should console my husband because he’s had a bad day.” I feel distressed in a “this is incredibly stressful and I want it to stop” kind of way. My brain immediately goes into “fix it” mode, searching for a way to make the other person feel better so I can also relieve my own distress.


...

...and I am sitting here going "wait, what, you mean everyone's not like that"

and, like, except for the 'impoverished imagination and fantasy life' bit I would totally be labeling myself alexithymic

because *there is a word for that*

Argh

Dec. 9th, 2014 09:03 pm
ysobel: A man wielding a kitchen knife and making an adorable yelling face (rage)
I am really fucking stabbyfaced right now and I don’t like ANYTHING. I don’t like myself, or the writing I’m doing, or my mom, or my aides, or people in general, or the storm that’s coming, or anything

I want to scream and cry and hide and punch stuff and stab everything

(even Yahtzee isn’t helping; he came over and paw-tapped my chair and I just wanted to yell at him that I am a horrible person and he should leave me alone. I didn’t, but I really really wanted to)

I don’t know what to do with this anger

(except turn it inwards but I’m trying not to because that way leads badness)

I just

I can’t even deal

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ysobel: (Default)
masquerading as a man with a reason

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