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Oct. 29th, 2021 06:56 pmLast year I was super into Animal Crossing, though by December I was kind of burnt out ... not completely, but between Halloween and Toy Day there was a lot of eventing. But also I was bonding with my aide S, who also played, and I was planning island designs and stuff.
January was when S got hit by a car, and had to stop working abruptly because badly broken ankle; I heard from her once maybe a week oater, and nothing since. I don't know how she's doing, if she's still in the area, if she's even alive.
In some ways it feels like I had a trauma reaction, like my brain just shut down. I recruited a friend L to take over scheduling my aides, which is probably the only reason I survived January. (L has been helping since, because she likes doing it.)
I don't think I've touched my Switch since. Not just AC but anything. The Yoshi game had gotten to too hard levels, I never got far into Unraveled, and AC was just ... I couldn't. At some point I figured out the link with S and grief/trauma, so I figured I'd wait it out.
Recently Nintendo announced the Nov update for ACNH, and it's fucking AWESOME. I'm not as rabid about Brewster as some people are, but. Fences! Accent walls! Lights! Permanent ladders! Crops! COOKING!! New islands to visit! And it's the day after my birthday so basically a free birthday present? Hell yeah!
(The paid dlc looks awesome too but I'm waiting; I can probably afford it but I want to make sure I actually get back into AC first.)
The update literally had my jaw dropping, and I was getting excited about the game again. Yes there will be many weeds and things to clean up and stuff, but I have online friends that promised to help if I wanted.
Only...
I still haven't touched the Switch.
Partly it's that I'm out of the habit of having my aides get out the Switch as part of the morning routine -- all but one of my aides are new to this year. Partly I kept forgetting about it until after I'd in bed, and I'd think "tomorrow I will remember" and then the next day would spend the whole day on Twitter again.
Today I actually thought of it, during the day, when an aide was even here. And I couldn't do it. Couldn't even ask.
I feel so fucking broken.
January was when S got hit by a car, and had to stop working abruptly because badly broken ankle; I heard from her once maybe a week oater, and nothing since. I don't know how she's doing, if she's still in the area, if she's even alive.
In some ways it feels like I had a trauma reaction, like my brain just shut down. I recruited a friend L to take over scheduling my aides, which is probably the only reason I survived January. (L has been helping since, because she likes doing it.)
I don't think I've touched my Switch since. Not just AC but anything. The Yoshi game had gotten to too hard levels, I never got far into Unraveled, and AC was just ... I couldn't. At some point I figured out the link with S and grief/trauma, so I figured I'd wait it out.
Recently Nintendo announced the Nov update for ACNH, and it's fucking AWESOME. I'm not as rabid about Brewster as some people are, but. Fences! Accent walls! Lights! Permanent ladders! Crops! COOKING!! New islands to visit! And it's the day after my birthday so basically a free birthday present? Hell yeah!
(The paid dlc looks awesome too but I'm waiting; I can probably afford it but I want to make sure I actually get back into AC first.)
The update literally had my jaw dropping, and I was getting excited about the game again. Yes there will be many weeds and things to clean up and stuff, but I have online friends that promised to help if I wanted.
Only...
I still haven't touched the Switch.
Partly it's that I'm out of the habit of having my aides get out the Switch as part of the morning routine -- all but one of my aides are new to this year. Partly I kept forgetting about it until after I'd in bed, and I'd think "tomorrow I will remember" and then the next day would spend the whole day on Twitter again.
Today I actually thought of it, during the day, when an aide was even here. And I couldn't do it. Couldn't even ask.
I feel so fucking broken.
Oh goody, more medical shenanigans
May. 26th, 2021 06:55 pmToo spoonless to tell this in any entertaining way, but I seem to be having gallbladder issues. Two separate attacks of very severe pain just under the breastbone and radiating to the back, rather like I was being impaled by a spear.
Went to doctor today; she wants me to get an ultrasound, but in the meantime avoid fatty foods, like, y'know, eggs and cheese and peanut butter and ice cream and pizza and stuff.
...all of which I now really want...
Whine.
Also I somehow got extremely saladed out a few weeks ago and have been very resistant to salads since then, which ... really doesn't help.
Went to doctor today; she wants me to get an ultrasound, but in the meantime avoid fatty foods, like, y'know, eggs and cheese and peanut butter and ice cream and pizza and stuff.
...all of which I now really want...
Whine.
Also I somehow got extremely saladed out a few weeks ago and have been very resistant to salads since then, which ... really doesn't help.
(no subject)
Jan. 5th, 2021 05:49 pmwhy today is exciting, part 27: sat on toilet in a way that had the hip/thigh bone growth twanging my sciatic nerve like a banjo string
there may have been Language
(part 26 involved finding out one of the caregivers I'm training just had her housemate test positive for covid)
(part 25 is the PA political shitfuckery)
(I just kinda ... can't)
there may have been Language
(part 26 involved finding out one of the caregivers I'm training just had her housemate test positive for covid)
(part 25 is the PA political shitfuckery)
(I just kinda ... can't)
(no subject)
Jan. 3rd, 2021 04:10 pm2021 is not getting off to a great start.
My aide S, who's been doing 90% of the shifts because all the students are gone (and even with the students was doing half the shifts) .. got hit by a car last night while walking her dog, & is now in the hospital with broken foot and ankle. And has to deal with police shit because it was a hit and run.
Luckily my roommate is here and able to cover, but.
I keep going from 'okay' to random crying. Can't tell how much is for S and how much is for me and how much is just Emotions Suck.
(Also sigh at my mom. She's physically unable to do the commode chair stuff, so she can't help me out in that way. In the group text with her and my sister I said I wouldn't be able to do the family video chat today, explained what was going on and that I was scrambling to get aide coverage, and literally said "there's nothing either of you can do to help aside from not asking a lot of questions, I'm just letting you know". So of course my mom insists that she could help with aide stuff... then texts me to ask if I'll need her help today... I know she wants to help but I don't need to deal with managing her as well...!)
My aide S, who's been doing 90% of the shifts because all the students are gone (and even with the students was doing half the shifts) .. got hit by a car last night while walking her dog, & is now in the hospital with broken foot and ankle. And has to deal with police shit because it was a hit and run.
Luckily my roommate is here and able to cover, but.
I keep going from 'okay' to random crying. Can't tell how much is for S and how much is for me and how much is just Emotions Suck.
(Also sigh at my mom. She's physically unable to do the commode chair stuff, so she can't help me out in that way. In the group text with her and my sister I said I wouldn't be able to do the family video chat today, explained what was going on and that I was scrambling to get aide coverage, and literally said "there's nothing either of you can do to help aside from not asking a lot of questions, I'm just letting you know". So of course my mom insists that she could help with aide stuff... then texts me to ask if I'll need her help today... I know she wants to help but I don't need to deal with managing her as well...!)
Well... fuck
Jul. 29th, 2020 02:00 pmYou know the shitshow that is Ravelry's new look? Which was causing eye strain and migraines and seizures? And the site updates since then have all used perky icons (that are in some cases impossible to determine the meaning of) rather than bullet points?
It just got worse.
I'm shaking too hard to transcribe, but summary -- form letter response from Cassidy saying NuRav isn't causing medical issues, people are just spreading malicious lies.
Or, as![[twitter.com profile]](https://p.dreamwidth.org/e0caa790ec10/-/twitter.com/favicon.ico)
ktb38 says:
I'm pretty much in shock right now. Of all possible responses from C, this was not even imaginable.
I fully expect rage tears later, but right now I'm just ... numb.
Edit with transcript:
It just got worse.
I'm shaking too hard to transcribe, but summary -- form letter response from Cassidy saying NuRav isn't causing medical issues, people are just spreading malicious lies.
Or, as
Ravelry is now sending out a form letter.
Saying there are no problems with the updated design.
Everyone who has problems is lying.
The disability community is lying, according to ravelry.
Share this. Tell everyone what ravelry is doing.
#ravelryaccessibility #ravelry
I'm pretty much in shock right now. Of all possible responses from C, this was not even imaginable.
I fully expect rage tears later, but right now I'm just ... numb.
Edit with transcript:
Ravelry's updated design does not cause seizures, migraines or other medical issues.
The Epilepsy Foundation did not "call out" Ravelry. Angry users stared [sic] a letter writing campaign and the foundation published their warning based on these letters without any verification or research, as appears to be their policy. A medical doctor who specializes in migraines and seizures has said that he does not believe that Ravelry is causing seizures or migraines. We have found zero evidence that there is anything about the new design that causes migraines or seizures.
I would like people to consider their sources before spreading false information.
Cassidy
oh good fucking grief
Jun. 23rd, 2020 12:53 pmSo the fucking disaster that is Ravelry's makeover
that is literally giving people migraines and seizures
and not usable by screen readers
has not been rolled back, or de-animated, or in any way made accessible
and there's been no explanation
the front page still has just a chirpy twee "explanation" of the redesign with stuff like "We tried a bunch of different approaches but ended up with a simple misshapen circle with the r in it. Like the primary logo, we kept the secondary mark simple so that it could be flexibly used. We affectionately call her "Lumpy" :)" and "We already had our cinnamon color for the logo, and now we needed some color friends." (the logo is coral not cinnamon) and "we didn't want the colors to follow current web trends in color schemes" (coral/teal is not unique) and "I can't stress enough how much hard work, thought, and love went into the new look."
there have been daily feedback threads that pay lip service to "We also will not permit accessibility issues to be dismissed." but also say "We understand that those of you giving feedback in this thread would like us to make the Classic Ravelry site the default site. We feel that keeping Ravelry’s New Look as our default, with an option to opt-in to the Classic Ravelry look as we improve the new site, is the best option." and there are no answers or explanations for anything, so it has the feeling of shouting into a void
this is not the first time rav has had accessibility issues, but holy fuck this is just a dumpster fire
I am so very out of cope
that is literally giving people migraines and seizures
and not usable by screen readers
has not been rolled back, or de-animated, or in any way made accessible
and there's been no explanation
the front page still has just a chirpy twee "explanation" of the redesign with stuff like "We tried a bunch of different approaches but ended up with a simple misshapen circle with the r in it. Like the primary logo, we kept the secondary mark simple so that it could be flexibly used. We affectionately call her "Lumpy" :)" and "We already had our cinnamon color for the logo, and now we needed some color friends." (the logo is coral not cinnamon) and "we didn't want the colors to follow current web trends in color schemes" (coral/teal is not unique) and "I can't stress enough how much hard work, thought, and love went into the new look."
there have been daily feedback threads that pay lip service to "We also will not permit accessibility issues to be dismissed." but also say "We understand that those of you giving feedback in this thread would like us to make the Classic Ravelry site the default site. We feel that keeping Ravelry’s New Look as our default, with an option to opt-in to the Classic Ravelry look as we improve the new site, is the best option." and there are no answers or explanations for anything, so it has the feeling of shouting into a void
this is not the first time rav has had accessibility issues, but holy fuck this is just a dumpster fire
I am so very out of cope
Gah. Stoppit.
Feb. 6th, 2020 12:31 amFebruary is sucking so hard, so far.
Sunday night: aide called in sick. I got her shifts covered.
Monday: *deep breath* lessee. A different aide let me know she can't do Thursday nights any more. I had the *stupidest ever* appointment that required an hour total of driving, and fifteen minutes of waiting, just so that they could confirm that my cpap machine, which has been giving "motor life exceeded" errors, had in fact exceeded the recommended motor life. (It's normally replaced every five years, and I'm 9 months short of that, but I'm in bed 14-16 hours most days, and the cpap is running the whole time.) They didn't replace it (this was one step in the process of getting an early replacement) but it was complete BS.
And then there's the Chess saga, wherein he had to go in for surgery for intestinal blockage that turned out to be a *foot long stick* wtf I can't even fathom how he got that down. And while they were doing the surgery they discovered that it had rotated in a bad direction and punctured his stomach. So ... not good. He stayed in ICU overnight, and will be in the hospital a few more days, but full recovery will take longer. He IS doing better now, eating and wagging his tail and rolling over for belly rubs and generally charming everyone there.
(The trainer feels horrible about this, which on the one hand I can completely understand, and puppies will puppy and things happen and she didn't do this on purpose, but there's also a part of me that's like "(grumpycat) GOOD", because augh. SHE BROKE MY DOG, only not really, and he IS healing and it will be okay, but... yeah. And of course this is not going to be cheap (per the contract, she covers basic vet stuff and wellness checks and shots, but we cover any emergency issues) but more I'm just ... flaaaaail.
And Monkey has a UTI and has to get oral antibiotics, which means she's spending lots of time in impossible-to-reach places; and Yahtzee has something going on with his eye that needs him to go to an animal ophthalmologist. Both of which are technically January things but they're affecting February. And the ophthalmology guy my vet recommended had an appointment at 9:30 Friday morning, and is otherwise booked for a month out (the Friday thing was a cancellation), but he's half an hour away WITHOUT factoring in traffic, so I'm going to have to get up hella early compared to my usual.
Today: Got an email from Netflix that was all "we have changed your email as requested; you will no longer be able to use (email) to sign in. If you didn’t request this, click here to contact us". Felt very phishing-y, so I didn’t click on anything in the email. But I did go to sign in just to make sure I still could. And ... "we couldn't find an account with that email address". So I had to call them (still not clicking the email link because paranoid, but found their contact info a different way) and after confirming the last 4 digits of credit card to prove it was me, they changed my email back and sent me a reset-password link. Did that and also linked up my phone as a secondary source of authentication. But fuck, have no idea how someone got into my Netflix account...
...
I ... may be consuming rather a lot of sugar and carbs, the last few days. Stress eating. Not good for my body probably, but good for my mental health.
I'd really like things to *stop sucking*.
Sunday night: aide called in sick. I got her shifts covered.
Monday: *deep breath* lessee. A different aide let me know she can't do Thursday nights any more. I had the *stupidest ever* appointment that required an hour total of driving, and fifteen minutes of waiting, just so that they could confirm that my cpap machine, which has been giving "motor life exceeded" errors, had in fact exceeded the recommended motor life. (It's normally replaced every five years, and I'm 9 months short of that, but I'm in bed 14-16 hours most days, and the cpap is running the whole time.) They didn't replace it (this was one step in the process of getting an early replacement) but it was complete BS.
And then there's the Chess saga, wherein he had to go in for surgery for intestinal blockage that turned out to be a *foot long stick* wtf I can't even fathom how he got that down. And while they were doing the surgery they discovered that it had rotated in a bad direction and punctured his stomach. So ... not good. He stayed in ICU overnight, and will be in the hospital a few more days, but full recovery will take longer. He IS doing better now, eating and wagging his tail and rolling over for belly rubs and generally charming everyone there.
(The trainer feels horrible about this, which on the one hand I can completely understand, and puppies will puppy and things happen and she didn't do this on purpose, but there's also a part of me that's like "(grumpycat) GOOD", because augh. SHE BROKE MY DOG, only not really, and he IS healing and it will be okay, but... yeah. And of course this is not going to be cheap (per the contract, she covers basic vet stuff and wellness checks and shots, but we cover any emergency issues) but more I'm just ... flaaaaail.
And Monkey has a UTI and has to get oral antibiotics, which means she's spending lots of time in impossible-to-reach places; and Yahtzee has something going on with his eye that needs him to go to an animal ophthalmologist. Both of which are technically January things but they're affecting February. And the ophthalmology guy my vet recommended had an appointment at 9:30 Friday morning, and is otherwise booked for a month out (the Friday thing was a cancellation), but he's half an hour away WITHOUT factoring in traffic, so I'm going to have to get up hella early compared to my usual.
Today: Got an email from Netflix that was all "we have changed your email as requested; you will no longer be able to use (email) to sign in. If you didn’t request this, click here to contact us". Felt very phishing-y, so I didn’t click on anything in the email. But I did go to sign in just to make sure I still could. And ... "we couldn't find an account with that email address". So I had to call them (still not clicking the email link because paranoid, but found their contact info a different way) and after confirming the last 4 digits of credit card to prove it was me, they changed my email back and sent me a reset-password link. Did that and also linked up my phone as a secondary source of authentication. But fuck, have no idea how someone got into my Netflix account...
...
I ... may be consuming rather a lot of sugar and carbs, the last few days. Stress eating. Not good for my body probably, but good for my mental health.
I'd really like things to *stop sucking*.
I AM OFFICIALLY ROOMMATE-FREE
...I suspect I'm free of a few other things (like Tupperware that we disagree on whom it belongs to and, randomly enough, a bag of tooth care goodies from my dentist) but right now I don't ducking care
Awkward Roommate of No-Fucks-Given is GONE
I don't remember how much I ranted here about her, but some highlights:
* she liked smoking sage. I made the mistake of saying yes when she asked if it was okay, because I assumed it was a "cleanser on moving in" one time thing; but she kept doing it, and it just smelled like burn to me, and no amount of "please don't burn sage" changed her behavior
* she liked having all the doors and windows open. Even with air conditioning (or heat) running. Even with me in bed and her in her room with the door closed. Even after the night some guy being chased crashed through our back fence and came through the yard. Granted, the screen door was closed so the pets couldn't get out, except for the time it was off track and Monkey got out in the yard and Loki was "missing" for hours (luckily in closet rather than outside).
* she would not even say hi or bye to me, let alone "I'll be back at ____" or whatever
* half her duties involved being here at night in case of emergency, but when I had problems I couldn't reach her (and she never did even follow up the next day with "sorry I missed you last night are you ok")
That's not everything, just some of the stuff
It's been really *weird* and I'm not sorry to see her go. And she was doing weird passive aggressive shit today like using the labeled "dish sponge" for washing a bucket from outside.
Also, randomly, a day or so before I sent her the "This isn't working (you're fired)" email, she mumbled something about "I'm leaving next week" on her way out the door, and it wasn't clear whether she meant leaving for Christmas break or leaving entirely; I sent her the email and never got any response, so I was going to send her a text message to make sure she saw it; and my mom (who's been staying here since I got sick) woke me up at 8:30 saying roommate was packing to leave. Roommate claims she told me. I still maintain that it wasn't at all clear when, let alone for how long. ¯\_(ツ)_/¯
Not my ducking business any more.
...I suspect I'm free of a few other things (like Tupperware that we disagree on whom it belongs to and, randomly enough, a bag of tooth care goodies from my dentist) but right now I don't ducking care
Awkward Roommate of No-Fucks-Given is GONE
I don't remember how much I ranted here about her, but some highlights:
* she liked smoking sage. I made the mistake of saying yes when she asked if it was okay, because I assumed it was a "cleanser on moving in" one time thing; but she kept doing it, and it just smelled like burn to me, and no amount of "please don't burn sage" changed her behavior
* she liked having all the doors and windows open. Even with air conditioning (or heat) running. Even with me in bed and her in her room with the door closed. Even after the night some guy being chased crashed through our back fence and came through the yard. Granted, the screen door was closed so the pets couldn't get out, except for the time it was off track and Monkey got out in the yard and Loki was "missing" for hours (luckily in closet rather than outside).
* she would not even say hi or bye to me, let alone "I'll be back at ____" or whatever
* half her duties involved being here at night in case of emergency, but when I had problems I couldn't reach her (and she never did even follow up the next day with "sorry I missed you last night are you ok")
That's not everything, just some of the stuff
It's been really *weird* and I'm not sorry to see her go. And she was doing weird passive aggressive shit today like using the labeled "dish sponge" for washing a bucket from outside.
Also, randomly, a day or so before I sent her the "This isn't working (you're fired)" email, she mumbled something about "I'm leaving next week" on her way out the door, and it wasn't clear whether she meant leaving for Christmas break or leaving entirely; I sent her the email and never got any response, so I was going to send her a text message to make sure she saw it; and my mom (who's been staying here since I got sick) woke me up at 8:30 saying roommate was packing to leave. Roommate claims she told me. I still maintain that it wasn't at all clear when, let alone for how long. ¯\_(ツ)_/¯
Not my ducking business any more.
...why is update a word br downdate isn't?
Anyway.
1. Hit 1000 day streak in Duolingo (!], which also means that -- given my previous streaks -- I've done more than 2k total days (!!). That's a lot. ...of course, two days later i missed a day, but streak freeze caught that one. Still, I'm likely to lose it st some point.
2. The book I was hate reading? I finished it and kind of wish I hadn't. CW abuse:
( Read more... )
Needless to say, I don't recommend it.
2b. (Or not 2b, that is the question) -- er, I mean, one good thing is that the book has resparked my interest in working on the 50 Shades of Ace project (aka rewriting fsog with sensible characters and an ace protagonist who discovers that she loves kink).
3. I tried listening to the audiobook I have checked out from the library, but the narrator is the same guy that does the version of Watership Down that I utterly adore, to the point of listening to it a ton of times. IF's my default going-to-sleep hook, because soothing narrator and a story I know well that's nicely compartmentalized so it doesn't matter if I drift in and out. And I keep having this brain short listening to this other one *because he's not narrating rabbits aaahhhhh*. I may have to read that book instead of listening, lol.
4. My self-imposed yarn diet (because I have way more yarn than I could ever use) is conflicting with my need buy rainbow yarn. (I have only one rainbow skein and it's gone missing along with the partial shawl. I think the black widows stole it.) Also, someone on rav is making various queer sea creatures for pride season -- octobi, genderflusquid, pridetopus -- and one of the ones is an aceopus, and now I have a mighty need to make one. Though *that* I can scrounge up yarn for (grey white black purple).
5. At what point does feeling like I'm drowning in life crises stop becoming an acknowledgment of stressful reality and start becoming a crutch? Asking for a friend.
6. Mark Harmon is pretty. I've been rewatching NCIS -- not so much a binge as ragged uneven spurts -- and i am very 😍 at Gibbs. Very aesthetically pleasing.
7. There is apparently a new Men In Black movie, starring Thor and the Valkyrie. The trailer makes it look astoundingly stupid. I think I will rewatch the original mib instead.
Anyway.
1. Hit 1000 day streak in Duolingo (!], which also means that -- given my previous streaks -- I've done more than 2k total days (!!). That's a lot. ...of course, two days later i missed a day, but streak freeze caught that one. Still, I'm likely to lose it st some point.
2. The book I was hate reading? I finished it and kind of wish I hadn't. CW abuse:
( Read more... )
Needless to say, I don't recommend it.
2b. (Or not 2b, that is the question) -- er, I mean, one good thing is that the book has resparked my interest in working on the 50 Shades of Ace project (aka rewriting fsog with sensible characters and an ace protagonist who discovers that she loves kink).
3. I tried listening to the audiobook I have checked out from the library, but the narrator is the same guy that does the version of Watership Down that I utterly adore, to the point of listening to it a ton of times. IF's my default going-to-sleep hook, because soothing narrator and a story I know well that's nicely compartmentalized so it doesn't matter if I drift in and out. And I keep having this brain short listening to this other one *because he's not narrating rabbits aaahhhhh*. I may have to read that book instead of listening, lol.
4. My self-imposed yarn diet (because I have way more yarn than I could ever use) is conflicting with my need buy rainbow yarn. (I have only one rainbow skein and it's gone missing along with the partial shawl. I think the black widows stole it.) Also, someone on rav is making various queer sea creatures for pride season -- octobi, genderflusquid, pridetopus -- and one of the ones is an aceopus, and now I have a mighty need to make one. Though *that* I can scrounge up yarn for (grey white black purple).
5. At what point does feeling like I'm drowning in life crises stop becoming an acknowledgment of stressful reality and start becoming a crutch? Asking for a friend.
6. Mark Harmon is pretty. I've been rewatching NCIS -- not so much a binge as ragged uneven spurts -- and i am very 😍 at Gibbs. Very aesthetically pleasing.
7. There is apparently a new Men In Black movie, starring Thor and the Valkyrie. The trailer makes it look astoundingly stupid. I think I will rewatch the original mib instead.
There is a book I picked up probably when it was free on Amazon, that is so bad I am currently hate-reading it (but will probably stop because I have better things to do with my time).
I do not know if the mystery resolves in any satisfying way or if the characters ever stop being so cliche. But the writing is ... painful.
( Read more... )
...I can't decide whether to keep reading or move on to something actually worthwhile. Apparently my wtf face for a lot of use this afternoon...
I do not know if the mystery resolves in any satisfying way or if the characters ever stop being so cliche. But the writing is ... painful.
( Read more... )
...I can't decide whether to keep reading or move on to something actually worthwhile. Apparently my wtf face for a lot of use this afternoon...
PSA - Netflix's Afflicted
Aug. 24th, 2018 07:40 pmSo ... Netflix has a new-ish show, Afflucted, that I've been waffling in whether or not to watch. It advertised as a documentary following people with chronic illnesses. I wasn't sure, in advance, whether it was going to be sympathetic or dramatastic.
It's the latter. In a "oh it's all in their head" way. And it deliberately twisted the stories of *everyone* involved, who were misled about the purpose of the show (documentary ga reality tv) and were basically abused by the production staff.
https://medium.com/@afflicted/the-truth-behind-netflixs-afflicted-92e92d32cd7c is worth reading. If links to essays written by the participants, detailing the experience and also the facts that got left out about things like, oh, say, actual diagnoses and actual medical info and actual *everything*.
I am Not Impressed.
It's the latter. In a "oh it's all in their head" way. And it deliberately twisted the stories of *everyone* involved, who were misled about the purpose of the show (documentary ga reality tv) and were basically abused by the production staff.
https://medium.com/@afflicted/the-truth-behind-netflixs-afflicted-92e92d32cd7c is worth reading. If links to essays written by the participants, detailing the experience and also the facts that got left out about things like, oh, say, actual diagnoses and actual medical info and actual *everything*.
I am Not Impressed.
In which things are frustrating
May. 8th, 2018 01:09 amThe last couple of days have been ... miserable.
Yesterday I got tired of my iPad (which I mostly use in bed) nagging me about updating the iOS, so I backed it up and then tried to update. Which required updating iTunes first, rebooting the computer, and *then* doing the iPad update.
...except it wouldn't. It stalled out and gave error 2003, and meanwhile the iPad was stuck in recovery mode, therefore unusable.
Cue google searches and various unsuccessful attempts to get it working.
Three hours later, literally in tears, I called Apple support, who said that 2003 was an odd error message (it was in the range of USB errors but not one of the usual ones. He suggested rebooting the computer ... which of course decided that was the perfect time to apply updates ... and when it finally got in my control and I went into iTunes, updating of course still didn't work, so he said maybe try a different cord, or else bring it in to an Apple Store for help.
...the closest Apple Store (I have no idea why my autocarrot is capitalizing that) is in Sacramento.
I didn't have a spare cord.
My dad probably did, but wouldn't have been able to come until today. And while some usage of the iPad is optional (reading, Netflix, games, etc) i really really need music to help me get to sleep, since it gives me something other than brainweasels to listen to. And boy howdy were the 'weasels active, because of how "I" fucked up the iPad.
At this point -- around 8pm, well after I'm usually in bed (because it's way more comfortable than sitting upright) -- I was pretty much in meltdown, and hating myself for it, because it’s such a first world problem and most people sleep perfectly fine without iPads. Not that hating myself did anything helpful like stop me from crying.
My evening aide offered to have her ... er, gentleman friend ... run out to Walmart (which is about 25min drive away but it's open 24/7) and pick up some cords. I was desperate enough to say yes; and of course I couldn't go to bed because I needed to be able to sync up the iPad once the cords got here, and there was a good chance it would require my Apple ID password.
Hour (and some chocolate) later, cords arrive. And they work. But at this point the iPad is fucked up enough that it required full reset to factory defaults and then restoring from backup.
OS installs correctly. Backup requires my password, then starts ...
...time remaining: one hour.
:sob:
I finally got to bed at 11:30, and then had to do all the stupid "new"-iPad setup before I could get to the music. Plus I was in post-meltdown crap mode that "naturally" included suicidal ideation and then hating myself for getting that upset over a stupid tablet.
It was maybe 2:30 before I got completely to sleep.
...meanwhile, to add insult to injury, the yarn I was using for the newest project wasn't enough to complete the project, and the sensible thing is to start over with a different green yarn that I have, but I really just wanted more of the yarn I was already using. So I did end up ordering it today as a reward for surviving yesterday. It’s stupid but at least the thing I’m making will be cute. (its a cactus bunny. I am in a cactusy mood.(
Today hasn’t been fun. I’m more tired than usual, and kind of in meltdown hangover. And not all of my games are behaving; one is treating me like a new player, and I tried logging in with the various sets of passwords I use for mobile games in combination with the three emails I might have used but nothing worked. It’s not one I spent money on, so I could theoretically just start over, but losing progress and starting over is just ... discouraging.
(And there’s one game I still miss that flat out won’t work in os11 because the app is too old and un~updated. There’s a different app with a similar concept but instead of being a daily free puzzle it’s done as packs, some free and some that you buy, and it’s just less fun that way. Sulk.)
Yesterday I got tired of my iPad (which I mostly use in bed) nagging me about updating the iOS, so I backed it up and then tried to update. Which required updating iTunes first, rebooting the computer, and *then* doing the iPad update.
...except it wouldn't. It stalled out and gave error 2003, and meanwhile the iPad was stuck in recovery mode, therefore unusable.
Cue google searches and various unsuccessful attempts to get it working.
Three hours later, literally in tears, I called Apple support, who said that 2003 was an odd error message (it was in the range of USB errors but not one of the usual ones. He suggested rebooting the computer ... which of course decided that was the perfect time to apply updates ... and when it finally got in my control and I went into iTunes, updating of course still didn't work, so he said maybe try a different cord, or else bring it in to an Apple Store for help.
...the closest Apple Store (I have no idea why my autocarrot is capitalizing that) is in Sacramento.
I didn't have a spare cord.
My dad probably did, but wouldn't have been able to come until today. And while some usage of the iPad is optional (reading, Netflix, games, etc) i really really need music to help me get to sleep, since it gives me something other than brainweasels to listen to. And boy howdy were the 'weasels active, because of how "I" fucked up the iPad.
At this point -- around 8pm, well after I'm usually in bed (because it's way more comfortable than sitting upright) -- I was pretty much in meltdown, and hating myself for it, because it’s such a first world problem and most people sleep perfectly fine without iPads. Not that hating myself did anything helpful like stop me from crying.
My evening aide offered to have her ... er, gentleman friend ... run out to Walmart (which is about 25min drive away but it's open 24/7) and pick up some cords. I was desperate enough to say yes; and of course I couldn't go to bed because I needed to be able to sync up the iPad once the cords got here, and there was a good chance it would require my Apple ID password.
Hour (and some chocolate) later, cords arrive. And they work. But at this point the iPad is fucked up enough that it required full reset to factory defaults and then restoring from backup.
OS installs correctly. Backup requires my password, then starts ...
...time remaining: one hour.
:sob:
I finally got to bed at 11:30, and then had to do all the stupid "new"-iPad setup before I could get to the music. Plus I was in post-meltdown crap mode that "naturally" included suicidal ideation and then hating myself for getting that upset over a stupid tablet.
It was maybe 2:30 before I got completely to sleep.
...meanwhile, to add insult to injury, the yarn I was using for the newest project wasn't enough to complete the project, and the sensible thing is to start over with a different green yarn that I have, but I really just wanted more of the yarn I was already using. So I did end up ordering it today as a reward for surviving yesterday. It’s stupid but at least the thing I’m making will be cute. (its a cactus bunny. I am in a cactusy mood.(
Today hasn’t been fun. I’m more tired than usual, and kind of in meltdown hangover. And not all of my games are behaving; one is treating me like a new player, and I tried logging in with the various sets of passwords I use for mobile games in combination with the three emails I might have used but nothing worked. It’s not one I spent money on, so I could theoretically just start over, but losing progress and starting over is just ... discouraging.
(And there’s one game I still miss that flat out won’t work in os11 because the app is too old and un~updated. There’s a different app with a similar concept but instead of being a daily free puzzle it’s done as packs, some free and some that you buy, and it’s just less fun that way. Sulk.)
(no subject)
Dec. 10th, 2017 06:51 pmI haven't been following my reading page so this may be common knowledge -- but:
Avoid the book "To Siri With Love" AT ALL COSTS. It is an ableist POS written by an abusively anti-autism "mom".
Good #actuallyautistic review here:
https://storify.com/KaelanRhy/boycotttosiri
Avoid the book "To Siri With Love" AT ALL COSTS. It is an ableist POS written by an abusively anti-autism "mom".
Good #actuallyautistic review here:
https://storify.com/KaelanRhy/boycotttosiri
(no subject)
Dec. 29th, 2016 12:20 amWhy is my brain. Seriously.
7pm: hey it’s bedtime ... you know you want to sleep ... here, I’ll help ... zzzz
9pm: oh hey we’re in bed, time to DO ALL THE THINGS
11pm: I AM NEVER SLEEPING AGAIN
the following morning: ughhh what was I thinking, must go to sleep sooner tonight
afternoon: so very groggy mehhhh can't wait for bed
7pm: hey it's bedtime ...
...
Every. Single. Fucking. Day.
The stupidest thing is I can’t tell if I’m groggy in the daytime because I’m oversleeping (and therefore would be better off trying to stay yo later to get less sleep) or undersleeping (and therefore would be better off trying to confiscate my own iPad at night). or if it's entirely just fucking meds.
Well, no, that’s the second stupidest. The actual stupidest is being tired until I get in bed and then being wide awake. Wtf is that anyway. I mean, it’s not just a matter of “bed is more comfortable so I choose to spend the last few hours of my day on bed”; I actually end up half falling asleep on my aide while they’re putting me to bed. And then am awake. Because that makes so much sense.
It used to be that 10 was early for me to go to bed -- and now I wilt by like 7 or 8. Until I'm in bed. But I think I'm still really half wilted, because I think my body needs to be in bed even when my brain isn't ready, but I dont have any stamina any more.
And I think it would be a bit different if I could get in and out of bed by myself, or if I didn't have someone coming at a fixed time to get me up on the morning, but the whole thing is just ,,, frustrating and I don't understand it way.
7pm: hey it’s bedtime ... you know you want to sleep ... here, I’ll help ... zzzz
9pm: oh hey we’re in bed, time to DO ALL THE THINGS
11pm: I AM NEVER SLEEPING AGAIN
the following morning: ughhh what was I thinking, must go to sleep sooner tonight
afternoon: so very groggy mehhhh can't wait for bed
7pm: hey it's bedtime ...
...
Every. Single. Fucking. Day.
The stupidest thing is I can’t tell if I’m groggy in the daytime because I’m oversleeping (and therefore would be better off trying to stay yo later to get less sleep) or undersleeping (and therefore would be better off trying to confiscate my own iPad at night). or if it's entirely just fucking meds.
Well, no, that’s the second stupidest. The actual stupidest is being tired until I get in bed and then being wide awake. Wtf is that anyway. I mean, it’s not just a matter of “bed is more comfortable so I choose to spend the last few hours of my day on bed”; I actually end up half falling asleep on my aide while they’re putting me to bed. And then am awake. Because that makes so much sense.
It used to be that 10 was early for me to go to bed -- and now I wilt by like 7 or 8. Until I'm in bed. But I think I'm still really half wilted, because I think my body needs to be in bed even when my brain isn't ready, but I dont have any stamina any more.
And I think it would be a bit different if I could get in and out of bed by myself, or if I didn't have someone coming at a fixed time to get me up on the morning, but the whole thing is just ,,, frustrating and I don't understand it way.
(no subject)
Mar. 30th, 2010 08:10 pmDear universe:
I understand that the good luck of finding Awesome Roommates kind of needs balancing out by certain amounts of not-as-good luck.
But really, can you stop shitting on me now?
No love,
a rather cranky Ysa who has to find a new PA because one just gave abrupt two-week notice
I understand that the good luck of finding Awesome Roommates kind of needs balancing out by certain amounts of not-as-good luck.
But really, can you stop shitting on me now?
No love,
a rather cranky Ysa who has to find a new PA because one just gave abrupt two-week notice
